Parkinson’s disease can be disarming when it comes to being heard, being seen, and being understood!

Sharing Over 40 Years of Wisdom Living with Parkinson's Disease by author Karl Robb
Parkinson’s disease can be disarming when it comes to being heard, being seen, and being understood!
Today is the day to make a step forward! #MotivationMonday ….
Messages of gratitude and thankfulness to friends and family are a wonderful way to begin the week #MotivationMonday
3 Pieces of Advice to Newly Diagnosed #MotivationMonday
Staying on top of our goals and keeping focused with Parkinson’s disease can be very difficult for many of us.
You hear both Karl’s (a person with Parkinson’s) and Angela’s (a carepartner) unique perspectives about routine and facing Parkinson’s disease.
A conversation about mind matters & Parkinson’s disease with neuropsychologist, Dr. Sarah Lageman.
It is a difficult task to face Parkinson’s disease. Choosing to be open to learning to work around this illness may just be the key.
Facing Parkinson’s with the help of Zoom has nurtured connections and built friendships from all over the world.
If you choose to isolate yourself and avoid the camaraderie of others, you are missing a vital component of your support team. #MotivationMonday
Just a little thing like a few moments in a quiet park or a walk along the beach is a simple pleasure that can cut your stress and rejuvenate you for the day.
Consider widening your perspective and exploring what you are attracted to and what you enjoy.
Facing Parkinson’s may be easier by taking advantage of the tools of humor and music. Humor and music are wonderful tools that cost very little but are easily implemented into your day.
A big part of taking care of yourself is self-care. Making the decision to do your best and keep as active, strong, and flexible as you can for yourself and those who care about you.
The urgency of patient care & research as we face Parkinson’s is a constant topic in our chronic condition community. How do we as a community start running to make accelerated progress in treatments and research in Parkinson’s?
Today, on World Parkinson’s Day, make this a day of remembrance where we might commemorate those who have left us—those who lead us on our path in advocacy, research, clinical trials, education, fitness, or just touched our lives!
There are many voices facing Parkinson’s Disease throughout our community with experiences, perspectives, research information, or helpful ideas that might improve your quality of life.
Getting older with young onset Parkinson’s disease provides a unique perspective. Young onset Parkinson’s disease (YOPD) will always be what I have, no matter how old I get.
Living well with Parkinson’s disease may mean something very different to us all. If we take the time for ourselves and make self-care a priority, we will benefit!
Many people facing Parkinson’s disease find that after their diagnosis, they are drawn to creating art. Do you make art? If so, how do you make your art?
Mental health changes while facing Parkinson’s is a non-motor symptom that needs more awareness. Apathy or depression are real and without awareness and without making a change, can get worse.
Friendships while facing Parkinson’s disease will either strengthen or eliminate friendships. You will notice that some friendships will change.
When we are facing Parkinson’s, there is so much information
Spreading awareness about and being an advocate for ending Parkinson’s disease is one of the ways I live well with my condition. What will you do to help us spread awareness and advocate for ending Parkinson’s?
April is Parkinson’s Awareness Month and I’m sharing a series called, Facing Parkinson’s. Each day, I will share a piece that I hope helps you as you face Parkinson’s disease.
I was reminded that I have an obligation for young onset and newly diagnosed with Parkinson’s Disease, who might learn from my experience. I am dedicated, after 40 years of living with Parkinson’s disease, to offering assistance and benefit to the Parkinson’s community.
Friendship makes life better! #MotivationMonday Speaking of friendship, my friend, Larry Gifford, co-founder of PD Avengers is presenting…
Try Focusing On the Positive and Not the Negative! If you can’t stay positive try avoiding to pass on a disparaging word that might impact others. #MotivationMonday
Where can you take a break from Parkinson’s disease with a group of friends to go places, laugh, create, and expand your imagination for a while, all without leaving your home? Learn the fun and benefits of improv…
Change is often necessary, yet still painful. We make changes for better living and new opportunities, even if we don’t see them immediately. #MotivationMonday