Category Archives: research

The New and Improved Tools & Resource page!

Knowledge is Power - A Soft Voice.com

I am happy to release a brand new resource page, chock full, of updated Parkinson’s disease related links, to blogs, websites, podcasts, and more – all in one convenient location. Better navigation makes it easier to find just what you are looking for. I hope this page assists you in finding helpful information on Parkinson’s and living well! Just click on the Tools and Resources button.

Stay informed and aware of what people with Parkinson’s disease are writing about, how they are dealing with the illness, and find information that may inspire or educate. Gain perspective and get unique views from people from all over the world. Broaden your outlook and see what people are working on. See how some are overcoming their symptoms and are living well with Parkinson’s.

The more you know about your illness, the better prepared you can be. Being aware and proactive may help you to take action towards improving your condition. Information is crucial to making health decisions and understanding options. There is so much to learn and share.

I believe that the real experts on illness are the people who live with illness, everyday. There is no denying the valuable contribution of the medical community, but on a daily basis, daily living is most applicable to those who are living it.

See the list of Parkinson’s organizations and keep in tune with programs and educational webinars that cover a wide range of informative topics that relate to Parkinson’s disease. Each organization offers a unique wide or regional focus that may be applicable to your needs.

I have always thought that the more tools that are in your toolbox, the better. Having a choice far outweighs a lack of options. Widening the availability of our options allows us to make more informed decisions.

Avoidance or turning a blind eye to your illness may be detrimental to your getting better. Learning about unfamiliar options can be empowering and offer comfort.

Hear It, Share It – How to Talk to Doctors (Part 3 of 4)

Knowledge is Power - A Soft Voice.com

It’s week 3 in my Hear It, Share It series. My goal for this series was to share some chapters of my audiobook (for free/no download) with you in hopes to help during this Coronoavirus pandemic. I hope you’ve enjoyed listening to these chapters and found something to take away!

Even though my book with this chapter was released in 2012, the information remains timely and pertinent for telehealth visits as well as in-person appointments. Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety. Click the play button below to hear voice actor/narrator, Doug Gochman read Chapter 9:

If you missed the first two parts of the series, you can use these links to go back and listen:

Part 1: Timing in Parkinson’s Disease May be Everything
Part 2: This Disease Isn’t Fair

Please feel free to comment about this chapter and share your own tips on how you talk with your doctor(s) by clicking the Leave a Comment button below. Share this post with others by clicking the share buttons on the right.

Come back next Thursday to hear the final installment in this audiobook sharing series! If you subscribe to the blog today, you will receive automatic notification when the next post is released.


I am not a doctor and this is not medical advice. This is my personal opinion that I’ve developed as I’ve lived with Parkinson’s disease for over 30 years.

My Droid Neighbors

Technology really can deliver, and Starship is proving it. This marvel of technology is providing an essential service, during this pandemic. My neighborhood in Virginia is being invaded by R2D2 lookalikes carrying meals from neighborhood restaurants. From coffee to ice cream these cute droids are aiming to please. This is innovation at it’s very best! GO ROBOTS!

At about 4 miles an hour, they zip down city sidewalks on target for delivery. What a date to praise the robot invasion—May the 4th be with you to all those techie and Star Wars lovers!

Rock Steady Boxing is making a difference in my Parkinson’s disease!

Rock Steady Boxing and my coach, Alec Langstein (https://rocksteadynova.com/), have made me stronger, fitter, and quicker. There is a definite and noticeable improvement in my mobility, agility, and balance. When I am hitting a heavy bag, I will hit it hard but when given the chance to hit with someone wearing focus mitts, I always hit harder, faster, and with more intensity. There is just something about the human interaction that makes me want to step it up a little and to put in even more effort. My coach and my boxing mates motivate me to do my best and to push myself to excel.

Rock Steady Boxing, three days a week, has made a very noticeable difference in my stamina, my overall condition, and my life. I am in the best shape of my life, if you don’t count the Parkinson’s disease—it sounds hard to believe, but it is true.

Finding What Works For You

Motivating words and cuing from my coach, my care partner/spouse, or even a concerned bystander can help me to work harder and find strength that I didn’t know was there. Music moves me, makes me box harder, focus better, and picks up my spirit, all at once. Digging deep down for strength has taught me that if I push myself, just a little more, I may be able to do a little more than I thought.

I encourage everyone with Parkinson’s seeking inspiration, motivation, and an exercise program to check out Rock Steady Boxing in their area. Finding that right exercise, therapy, or practice that feeds your spirit, is so important. Don’t wait or stop trying to find what works for you—time is precious!

2019 APDA Education Day in Williamsburg VA this Saturday 9/28

Online registration is still open until 9/25 for the 2019 APDA Virginia Education Day being held next Saturday 9/28 (9am-4pm) at the DoubleTree Williamsburg. April Is Disease Awareness Month!

Registration is only $25 for this day long event which includes speakers on a variety of important topics including:

-People who have Parkinson’s discussing how they live well with Parkinson’s

-Neurologists discussing how to people can live well with Parkinson’s

-Caregiver discussing tips and tricks

-Exercise panel discussing PWR!, Rock Steady Boxing, Tai Chi. Yoga and BIG

-Parkinson’s Research

-Brain Fitness

-Nutrition

and much more!

Click here for more information and to register!

 

%d bloggers like this: