Category Archives: Videos

A Partial History in Tees

Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt. Some of my shirts probably got worn out and some may have gotten lost, over time, but here is a smattering of the events that I either had some affiliation with or attended. It’s a tribute to past events and friends-some gone, but not forgotten.

I thought this video might be a good way to commemorate Parkinson’s Awareness Month. Old tee shirts can hold a lot of memories!

Please enjoy this video to see my collection of tee shirts that I picked up from various Parkinson’s gatherings. Just click this link to see the video: https://gopro.com/v/JbDZkdva0MWvg

 

 

Some things to watch on Netflix at this time.

If you have Netflix, here is a list of some suggestions to consider:

As we restrict ourselves from human interaction and search for binge-worthy material to entertain ourselves, I thought that I would share some of the programs that you might have missed. I tried to select mostly positive subjects or at least those that had upbeat outcomes:

Upbeat and Positive Shows to Binge on Netflix #1

No preference by order

The Repair Shop – A British reality show that is touching and heart-warming.

The Kindness Diaries – Another British show that makes you feel good.

Amazing Interiors – Surprises of the creativity that we humans think up!

Heal – Powerful and eye-opening!

Tidying Up – Marie Kondo transforms living spaces and lives.

Street Food – Behind the story of a few nation’s popular street foods.

The Story of God with Morgan Freeman – Thought-provoking.

Grand Designs – Some interesting builds!

The Game Changers – Look who is changing their diets and why.

The Andy Griffith Show – Good old-fashioned standby!

Hugo – Follow a boy’s magical journey!

Jeopardy – Compete with friends and family with the classic game show!

The Who Was Show – Humorous look at historical characters.

The Universe – Great visuals and a fascinating look at space.

The Twilight Zone – A treasure trove of sci-fi and great stories. (Not for young children.)

The Mind Explained (There is 9-11 footage so be careful, if you have kids-use parental judgement.) Explore the brain!

The Bodyguard-Follow a British Officer’s rise to Bodyguard. (Violence/Action)

Sherlock-not for kids – Modern day British genius solves mysterious crimes. Benedict Cumberbatch is brilliant in the role of a younger Sherlock. (Violence/Action)

Locke and Key – ( Mystery) I have just started it, but I am intrigued! Mysterious house and curious keys to explore.

Daredevil-violent Marvel series about the blind vigilante superhero! (Violence/Action)

These are just some shows that I am watching or have watched. Karl Robb 

Saying It Gracefully Through Poetry—Robin Morgan’s TED Talk

Eloquent and Poignant Descriptions

Robin Morgan’s TED talk in 2015 is an eloquent expression of her poetic epiphanies from years with Parkinson’s disease. Her gentle cadence and masterful verbiage put her finger on many of the concerns, frustrations, and unknowns in dealing with a most mysterious illness.

Poetry has always puzzled me. I read it—I write it, but rarely for public consumption. Ms. Morgan’s poetic prowess builds upon 4 of her poems that walk the listener, or this case, the viewer into what Parkinson’s disease is, on a very personal level.

A Better Understanding of Parkinson’s Disease

I found it to be fortuitous and coincidental that Ms. Morgan expresses the very same attitude towards the need of expression that I profess. My blog post from yesterday speaks of urgency for communication for a series of obvious reasons when it comes to an unpredictable neurological disorder such as Parkinson’s disease.

Sharing More-Hearing More

Not everyone with Parkinson’s is as comfortable and as candid as Ms. Morgan is in expressing themselves. Exposure from the growing, blogs, books, and videos, are opening the eyes of both those familiar and unfamiliar with revealing insights. Education and demystifying the layers of Parkinson’s disease can only lead to better understanding, communication, and therapies.

Season’s Greetings from Karl Robb at asoftvoice.com

Wishing all ASoftVoice.com readers a very Happy Holiday Season!

 

From Karl Robb:

 

Rock Steady Boxing is making a difference in my Parkinson’s disease!

Rock Steady Boxing and my coach, Alec Langstein (https://rocksteadynova.com/), have made me stronger, fitter, and quicker. There is a definite and noticeable improvement in my mobility, agility, and balance. When I am hitting a heavy bag, I will hit it hard but when given the chance to hit with someone wearing focus mitts, I always hit harder, faster, and with more intensity. There is just something about the human interaction that makes me want to step it up a little and to put in even more effort. My coach and my boxing mates motivate me to do my best and to push myself to excel.

Rock Steady Boxing, three days a week, has made a very noticeable difference in my stamina, my overall condition, and my life. I am in the best shape of my life, if you don’t count the Parkinson’s disease—it sounds hard to believe, but it is true.

Finding What Works For You

Motivating words and cuing from my coach, my care partner/spouse, or even a concerned bystander can help me to work harder and find strength that I didn’t know was there. Music moves me, makes me box harder, focus better, and picks up my spirit, all at once. Digging deep down for strength has taught me that if I push myself, just a little more, I may be able to do a little more than I thought.

I encourage everyone with Parkinson’s seeking inspiration, motivation, and an exercise program to check out Rock Steady Boxing in their area. Finding that right exercise, therapy, or practice that feeds your spirit, is so important. Don’t wait or stop trying to find what works for you—time is precious!

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