Angela and I sat down to talk with Rock Steady Boxing NoVA coach, My Parkinson Gym trainer, and friend, Alec Langstein as he interviews us about our perspectives, insights, and long history with Parkinson’s disease.
Watch these videos to learn more about these amazing people and how they are living with Parkinson’s disease!
In Depth Discussion w/ Dr. Michael Okun, University of Florida, Chair of Neurology. A longtime friend and fellow author, Michael, Angela, and I discuss a wide range of topics from advocacy, complementary medicine/reiki, exercise, and so much more.
Watch a candid & inspiring conversation with CEO and co-founder of Health Union, Olivier Chateau. His exciting approach is novel, refreshing, and so insightful! Learn about how Health Union provides online communities and empowers people with chronic conditions.
Once again, it’s World Parkinson’s Day! How are you going to educate and increase awareness of Parkinson’s Disease today?
How we look at ourselves and the rest of the world may require us to adjust our perspective to pull from our can do spirit. #MotivationMonday
Sometimes our steepest climbs bring out the greatest lessons. We don’t really know what we are capable of until we are forced to risk our survival, our comfort, or being reliant on our own expediency. #MotivationMonday
It’s a new day. It’s a new year. It’s a new you! Finding our way around the roadblocks in our lives only makes us stronger. #MotivationMonday
Angela and I were the hosts for speaker Polly Dawkins, Executive Director, of the Davis Phinney Foundation during a webinar organized by the Parkinson Social Network (PSN).
I invite you to join me and my friends at Parkinson Voice Project (PVP) for
The Mighty, one of the largest online information resources on various illnesses, recently launched their own Parkinson’s disease guide.
Self-care is a topic that I talk about quite a bit, on this blog. During these changing times, it can be easy to forget wellness tools and tips that we have in our toolbox.
Stay informed and aware of what people with Parkinson’s disease are writing about, how they are dealing with the illness, and find information that may inspire or educate. Gain perspective and get unique views from people from all over the world.
Mask It -The number of infected and deaths from COVID-19 are staggering. If a mask means life or death, there really is no logical excuse for not wearing one. Once again, this pandemic shows that without severe caution and diligence, it will escalate with ease. This virus is not a joke and it is not just going to go away, like magic.
ZOOM Is Changing The Way We Communicate by author and blogger Karl Robb – A Soft Voice in a Noisy World
I asked Dr. Dorsey what his thoughts were on the rapid burst of telehealth popularity. His remarks were, that if you like using telemedicine for physician visits, to tell your representatives, so that we can keep this most beneficial technology.
Chapter 29 offers some fresh perspectives and numerous suggestions on how we might make some changes in our daily lives. Voice actor, Doug Gochman does a wonderful job in expressing my words on the audio book.
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
In just a matter of days, our world has been turned upside down and around
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
Robin Morgan’s TED talk in 2015 is an eloquent expression of her poetic epiphanies from years with Parkinson’s disease. Her gentle cadence and masterful verbiage put her finger on many of the concerns, frustrations, and unknowns…
Wishing all ASoftVoice.com readers a very Happy Holiday Season! From Karl Robb: