Parkinson’s disease can be disarming when it comes to being heard, being seen, and being understood!
Category: Education & Support
The Many Voices Facing Parkinson’s Disease
There are many voices facing Parkinson’s Disease throughout our community with experiences, perspectives, research information, or helpful ideas that might improve your quality of life.
For Young Onset and Newly Diagnosed with Parkinson’s Disease
I was reminded that I have an obligation for young onset and newly diagnosed with Parkinson’s Disease, who might learn from my experience. I am dedicated, after 40 years of living with Parkinson’s disease, to offering assistance and benefit to the Parkinson’s community.
Instagram Chat with former Rock Steady Boxing Coach Alec Langstein
Instagram Chat with former Rock Steady Boxing Coach Alec Langstein.
The Voices of Our Community series from ParkinsonsDisease.net
Watch these videos to learn more about these amazing people and how they are living with Parkinson’s disease!
In Depth Discussion w/ Dr. Michael Okun, University of Florida, Chair of Neurology
In Depth Discussion w/ Dr. Michael Okun, University of Florida, Chair of Neurology. A longtime friend and fellow author, Michael, Angela, and I discuss a wide range of topics from advocacy, complementary medicine/reiki, exercise, and so much more.
A Thought-Provoking Talk with Health Union’s CEO & Co-founder, Olivier Chateau
Watch a candid & inspiring conversation with CEO and co-founder of Health Union, Olivier Chateau. His exciting approach is novel, refreshing, and so insightful! Learn about how Health Union provides online communities and empowers people with chronic conditions.
World Parkinson’s Day 2021 & Raising Awareness
Once again, it’s World Parkinson’s Day! How are you going to educate and increase awareness of Parkinson’s Disease today?
Perspective and Attitude Are Choices
How we look at ourselves and the rest of the world may require us to adjust our perspective to pull from our can do spirit. #MotivationMonday
The Steeper the Climb
Sometimes our steepest climbs bring out the greatest lessons. We don’t really know what we are capable of until we are forced to risk our survival, our comfort, or being reliant on our own expediency. #MotivationMonday
Motivation Monday – It’s a new day. It’s a new year. It’s a new you!
It’s a new day. It’s a new year. It’s a new you! Finding our way around the roadblocks in our lives only makes us stronger. #MotivationMonday
Building Your Parkinson’s Virtual Wellness Plan with Polly Dawkins via Parkinson Social Network (PSN)
Angela and I were the hosts for speaker Polly Dawkins, Executive Director, of the Davis Phinney Foundation during a webinar organized by the Parkinson Social Network (PSN).
Come join the Parkinson Voice Project 15th Anniversary Saturday, November 7, 2020 6:30pm CST (7:30pmEST)
I invite you to join me and my friends at
The Mighty’s Guide to Parkinson’s Disease
The Mighty, one of the largest online information resources on various illnesses, recently launched their own Parkinson’s disease guide.
A Parkinson’s Wellness Checklist
Self-care is a topic that I talk about quite a bit, on this blog. During these changing times, it can be easy to forget wellness tools and tips that we have in our toolbox.
The New and Improved Tools & Resource page!
Stay informed and aware of what people with Parkinson’s disease are writing about, how they are dealing with the illness, and find information that may inspire or educate. Gain perspective and get unique views from people from all over the world.
Mask It
Mask It -The number of infected and deaths from COVID-19 are staggering. If a mask means life or death, there really is no logical excuse for not wearing one. Once again, this pandemic shows that without severe caution and diligence, it will escalate with ease. This virus is not a joke and it is not just going to go away, like magic.
ZOOM Is Changing The Way We Communicate
ZOOM Is Changing The Way We Communicate by author and blogger Karl Robb – A Soft Voice in a Noisy World
My First Online Doctor’s Visit – TeleHealth Makes Sense for Less Stress and Lower Expense
I asked Dr. Dorsey what his thoughts were on the rapid burst of telehealth popularity. His remarks were, that if you like using telemedicine for physician visits, to tell your representatives, so that we can keep this most beneficial technology.
Hear It, Share It – Positive Daily Living (Part 4 of 4)
Chapter 29 offers some fresh perspectives and numerous suggestions on how we might make some changes in our daily lives. Voice actor, Doug Gochman does a wonderful job in expressing my words on the audio book.
Hear It, Share It – How to Talk to Doctors (Part 3 of 4)
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
Does Masking Have A New Meaning?
There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
Hear It, Share It – (Part 2 of 4) – This Disease Isn’t Fair
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
Hear It, Share It (Part 1 of 4): Timing in Parkinson’s Disease May be Everything
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
Tools and Resources
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
A Partial History in Tees
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
It’s World Parkinson’s Day
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
A Very Different Parkinson’s Awareness Month!
In just a matter of days, our world has been
Spread Love, Compassion, Care, and Kindness-Not the Virus!
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
The Missing Month–Where Have I Been?
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
