Dealing and Healing with Parkinson's Disease by author Karl Robb
Young Onset Parkinson’s
Watch a candid & inspiring conversation with CEO and co-founder of Health Union, Olivier Chateau. His exciting approach is novel, refreshing, and so insightful! Learn about how Health Union provides online communities and empowers people with chronic conditions.
Every day is a gift. What we do with that gift is potential for self-improvement and a better world. #MotivationMonday
The difficulty with having Parkinson’s disease and aging is being able to distinguish what symptoms are treatable and which may be harbingers of an urgent red flag action.
Karl Robb and Angela Robb interview Dr. Ray Dorsey, who is a Parkinson’s Disease neurologist, researcher, and author. Dr. Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the University of Rochester Medical Center and co-author of the book Ending Parkinson’s Disease: A Prescription for Action.
February 23, 2021 marked the 30th anniversary of my official diagnosis for having Young Onset Parkinson’s disease (YOPD).
Angela and I were the hosts for speaker Polly Dawkins, Executive Director, of the Davis Phinney Foundation during a webinar organized by the Parkinson Social Network (PSN).
Our site has undergone a big redesign to improve your experience and navigation with much more to come. As one of the early blogs on Parkinson’s disease that is written by a person with the illness, it was released in 2008.
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
The added pressure of trying to produce “the right gift” and to cook “the right meal” on top of dealing with your Parkinson’s disease probably isn’t of benefit to your condition. I know from experience, that when I am overloaded with a laundry list of to-do items and I am facing deadlines, stress and tension builds higher and higher – only to make my PD worsen.
At the time of my diagnosis, I was said to be in the rare two percentile of patients. Now, according to the Parkinson’s Disease Foundation (PDF) it is estimated four percent of people with PD are diagnosed before the age of 50. It is estimated that 60,000 new cases are diagnosed a year and somewhere between 1 million to 1.5 million people in the United States are living with it.
These are just a few of my observations from living with Parkinson’s disease for over 30 years. I hope you find them to be of help and encourage you to share what have learned with me and my readers.
When my medications turned off immediately for no apparent reason, I was befuddled and beyond worried. Not long ago a good friend experienced the same perplexing event with no medical forewarning.
I have strategies to counteract Parkinson’s disease, but like most of us, I falter and forget to use them. I am exploring a 10 minute a day mind and body exercise program to see if just adding this short time can improve my day.
Parkinson’s disease has taught me so much about living! It has brought me a perspective, a purpose, and a focus!
Those of us living with the illness as well as our care partners, caregivers, and close relatives, are all well aware of the physical, the mental, and the spiritual toll that Parkinson’s can take.
April has been declared to be Parkinson’s Awareness Month. So, I pose this question to you—what does that mean?
10 Tips for Staying Positive and Proactive by Karl Robb – asoftvoice.com Take care of yourself. The more you know about Parkinson’s, the better. You play the key role in your own health.
I tweeted a story this morning that claimed studies prove that organic foods only real benefit is that they are lower in pesticides.
Nothing in our lives is for certain. Whether you are healthy or not, the one certainty is that things change. Plans change. The more flexible we are, the easier it is to adapt to change. Adapting does not mean you stop growing and learning.
Parkinson’s has taught me to appreciate every day, to appreciate and to truly be grateful for the good things and the simple pleasures in my life. Whether one has Parkinson’s disease or is in perfect health, the realization that a positive outlook not only makes you feel better but makes those around you feel better as well.
10 TIPS FOR BETTER LIVING WITH PARKINSON’S DISEASE (PD)(AND MAYBE SOME OTHER CHRONIC ILLNESSES)
American innovation is what made this country a world leader. I am an inventor. I have Parkinson’s Disease. It’s a disease that I have battled and lived with for over 20 years.
When I was first diagnosed at the age of 23, I have to admit, the
