You hear both Karl’s (a person with Parkinson’s) and Angela’s (a carepartner) unique perspectives about routine and facing Parkinson’s disease.
Category: Young Onset Parkinson’s
Young Onset Parkinson’s
The Many Voices Facing Parkinson’s Disease
There are many voices facing Parkinson’s Disease throughout our community with experiences, perspectives, research information, or helpful ideas that might improve your quality of life.
Getting Older with Young Onset Parkinson’s Disease
Getting older with young onset Parkinson’s disease provides a unique perspective. Young onset Parkinson’s disease (YOPD) will always be what I have, no matter how old I get.
For Young Onset and Newly Diagnosed with Parkinson’s Disease
I was reminded that I have an obligation for young onset and newly diagnosed with Parkinson’s Disease, who might learn from my experience. I am dedicated, after 40 years of living with Parkinson’s disease, to offering assistance and benefit to the Parkinson’s community.
Want To Act Up? It May Be A Break from Parkinson’s! It’s Improv!
Where can you take a break from Parkinson’s disease with a group of friends to go places, laugh, create, and expand your imagination for a while, all without leaving your home? Learn the fun and benefits of improv…
Changes for Better Living
Change is often necessary, yet still painful. We make changes for better living and new opportunities, even if we don’t see them immediately. #MotivationMonday
Conversation about Quality of Life Issues and Parkinson’s with Dr. Bradley McDaniels
Dr. Bradley McDaniels of the University of North Texas joins Angela and Karl Robb for a lively conversation about quality of life issues and Parkinson’s disease.
Affirmations for the Week Ahead
Push you boundaries! Don’t take excessive risks! Expand your limits! Keep seeking for answers! #MotivationMonday
Keeping On Our Path
In this world, full of distractions and misdirection, if we don’t have an itinerary or plan to keep us on our path, it becomes too easy to lose our way. #MotivationMonday
Making Self-Care a Priority
Self-care is about making your care a priority… #MotivationMonday
Jonah Hill’s movie, Stutz, is a must see!
Jonah Hill’s intimate, deep and powerful, insightful, and illuminating documentary film, Stutz, unleashes so many important topics for discussion and expression that can lead to healing and understanding!
Focus on Self-Care
Living well with Parkinson’s disease or any chronic illness requires dedication and a focus to your own self-care in every detail! #MotivationMonday
The Long Road to Hope: Ending Parkinson’s Disease documentary
Not for many years in my 30+ years of Parkinson’s disease have I seen a film that condenses and explains this mysterious illness so well.
Parkinson’s Awareness Month
Parkinson’s disease Awareness Month has begun! Spreading awareness and information, when at all possible is key. #ParkinsonsAwarenessMonth
Good Days and Great Days
A good day means you accomplished a task. A great day means you improved someone’s life! #MotivationMonday
Uncovering Potential Through Illness
Uncovering Potential Through Illness – Time is fleeting, Your life precious, and your potential, unlimited! #MotivationMonday
Nourishing the Spirit
In these volatile times, our daily spiritual diet is best nourished with gratitude, resilience, appreciation, empathy, and compassion. #MotivationMonday
Conversation with Jon Braddock, Author, Welcome to the YOPD Club
A conversation with author Jon Braddock. After his diagnosis with #YOPD, wrote a collection of 10 interviews to gain some perspective and to better understand from those who were living with young onset Parkinson’s.
5 Actions That I Do Everyday to Stay Better with A Chronic Illness
Routine has advantages. Routine makes a practice. A practice leads to becoming comfortable with the routine and finding the benefits of the practice.
Some Rules of the Rocky Road
Some Rules of the Rocky Road #MotivationMonday
Our 25th Wedding Anniversary!
Our 25th Wedding Anniversary! This is a tribute to my wife who has stood by me and behind me and made me a better person. #MotivationMonday
Fresh Eyes-Fresh Perspective
Often, we only see what we choose to see and not what can be or even what is. #MotivationMonday
Conversation with John Dahlem
Enjoy our conversation with a truly motivational man, mountain climber, John Dahlem, who does not have Parkinson’s disease but has messages that resonate with us all.
Meet John Ball
I think John is the perfect story to be the first person with Parkinson’s in our interviews as he shares his wisdom and indomitable spirit.
Every Day is a Gift
Every day is a gift. What we do with that gift is potential for self-improvement and a better world. #MotivationMonday
Aging and Parkinson’s Disease (PD)
The difficulty with having Parkinson’s disease and aging is being able to distinguish what symptoms are treatable and which may be harbingers of an urgent red flag action.
Interview with Dr. Ray Dorsey, Neurologist and Co-Author of Ending Parkinson’s Disease!
Karl Robb and Angela Robb interview Dr. Ray Dorsey, who is a Parkinson’s Disease neurologist, researcher, and author. Dr. Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the University of Rochester Medical Center and co-author of the book Ending Parkinson’s Disease: A Prescription for Action.
My 30 Year Anniversary of a Parkinson’s Diagnosis–with Gratitude
February 23, 2021 marked the 30th anniversary of my official diagnosis for having Young Onset Parkinson’s disease (YOPD).
Building Your Parkinson’s Virtual Wellness Plan with Polly Dawkins via Parkinson Social Network (PSN)
Angela and I were the hosts for speaker Polly Dawkins, Executive Director, of the Davis Phinney Foundation during a webinar organized by the Parkinson Social Network (PSN).
A New Look with More to Offer at ASoftVoice.com
Our site has undergone a big redesign to improve your experience and navigation with much more to come. As one of the early blogs on Parkinson’s disease that is written by a person with the illness, it was released in 2008.
