Living well with Parkinson’s disease or any chronic illness requires dedication and a focus to your own self-care in every detail! #MotivationMonday
Not for many years in my 30+ years of Parkinson’s disease have I seen a film that condenses and explains this mysterious illness so well.
Parkinson’s disease Awareness Month has begun! Spreading awareness and information, when at all possible is key. #ParkinsonsAwarenessMonth
A good day means you accomplished a task. A great day means you improved someone’s life! #MotivationMonday
Uncovering Potential Through Illness – Time is fleeting, Your life precious, and your potential, unlimited! #MotivationMonday
In these volatile times, our daily spiritual diet is best nourished with gratitude, resilience, appreciation, empathy, and compassion. #MotivationMonday
A conversation with author Jon Braddock. After his diagnosis with #YOPD, wrote a collection of 10 interviews to gain some perspective and to better understand from those who were living with young onset Parkinson’s.
Routine has advantages. Routine makes a practice. A practice leads to becoming comfortable with the routine and finding the benefits of the practice.
Some Rules of the Rocky Road #MotivationMonday
Our 25th Wedding Anniversary! This is a tribute to my wife who has stood by me and behind me and made me a better person. #MotivationMonday
Often, we only see what we choose to see and not what can be or even what is. #MotivationMonday
Enjoy our conversation with a truly motivational man, mountain climber, John Dahlem, who does not have Parkinson’s disease but has messages that resonate with us all.
I think John is the perfect story to be the first person with Parkinson’s in our interviews as he shares his wisdom and indomitable spirit.
Every day is a gift. What we do with that gift is potential for self-improvement and a better world. #MotivationMonday
The difficulty with having Parkinson’s disease and aging is being able to distinguish what symptoms are treatable and which may be harbingers of an urgent red flag action.
Karl Robb and Angela Robb interview Dr. Ray Dorsey, who is a Parkinson’s Disease neurologist, researcher, and author. Dr. Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the University of Rochester Medical Center and co-author of the book Ending Parkinson’s Disease: A Prescription for Action.
February 23, 2021 marked the 30th anniversary of my official diagnosis for having Young Onset Parkinson’s disease (YOPD).
Angela and I were the hosts for speaker Polly Dawkins, Executive Director, of the Davis Phinney Foundation during a webinar organized by the Parkinson Social Network (PSN).
Our site has undergone a big redesign to improve your experience and navigation with much more to come. As one of the early blogs on Parkinson’s disease that is written by a person with the illness, it was released in 2008.
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
Without some sort of plan or framework, it is very easy to get lost along
Parkinson’s disease comes with so many unwritten rules. Trying to find all that you need to know about this illness, all in one place, may be frustrating to collect. There is so much to remember and so much that you might forget.
To my friends and readers, I am excited to announce that I am going to
Never lose the curiosity and desire to learn more about everything! The world around us can feed our quest for knowledge and understanding as we continue to learn.
The added pressure of trying to produce “the right gift” and to cook “the right meal” on top of dealing with your Parkinson’s disease probably isn’t of benefit to your condition. I know from experience, that when I am overloaded with a laundry list of to-do items and I am facing deadlines, stress and tension builds higher and higher – only to make my PD worsen.
At the time of my diagnosis, I was said to be in the rare two percentile of patients. Now, according to the Parkinson’s Disease Foundation (PDF) it is estimated four percent of people with PD are diagnosed before the age of 50. It is estimated that 60,000 new cases are diagnosed a year and somewhere between 1 million to 1.5 million people in the United States are living with it.
These are just a few of my observations from living with Parkinson’s disease for over 30 years. I hope you find them to be of help and encourage you to share what have learned with me and my readers.
When my medications turned off immediately for no apparent reason, I was befuddled and beyond worried. Not long ago a good friend experienced the same perplexing event with no medical forewarning.
I have strategies to counteract Parkinson’s disease, but like most of us, I falter and forget to use them. I am exploring a 10 minute a day mind and body exercise program to see if just adding this short time can improve my day.
Parkinson’s disease has taught me so much about living! It has brought me a perspective, a purpose, and a focus!