Category: Young Onset Parkinson’s

Young Onset Parkinson’s

Stutz promo image from Netflix

Jonah Hill’s movie, Stutz, is a must see!

2022, Featured, Health, Inspiring Stories, Parkinson's Disease, Philosophy, Self Care, Videos, Young Onset Parkinson's, YouTube 2 comments

Jonah Hill’s intimate, deep and powerful, insightful, and illuminating documentary film, Stutz, unleashes so many important topics for discussion and expression that can lead to healing and understanding!

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Interview with Jon Braddock Title Slide

Conversation with Jon Braddock, Author, Welcome to the YOPD Club

2022, Inspiring Stories, Interviews, Parkinson's Disease, Videos, Young Onset Parkinson's, YouTube

A conversation with author Jon Braddock. After his diagnosis with #YOPD, wrote a collection of 10 interviews to gain some perspective and to better understand from those who were living with young onset Parkinson’s.

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Picture of Dr Ray Dorsey Neurologist, Researcher and Author

Interview with Dr. Ray Dorsey, Neurologist and Co-Author of Ending Parkinson’s Disease!

2021, Education, Health, Interviews, Parkinson's Disease, Politics, Research, Videos, Young Onset Parkinson's, YouTube 2 comments

Karl Robb and Angela Robb interview Dr. Ray Dorsey, who is a Parkinson’s Disease neurologist, researcher, and author. Dr. Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the University of Rochester Medical Center and co-author of the book Ending Parkinson’s Disease: A Prescription for Action.

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Promotional Slide for Polly Dawkins provided by Parkinson Social Network

Building Your Parkinson’s Virtual Wellness Plan with Polly Dawkins via Parkinson Social Network (PSN)

2020, Education & Support, Living Well, Parkinson's Disease, Self Care, Videos, Wellness, Young Onset Parkinson's, YouTube

Angela and I were the hosts for speaker Polly Dawkins, Executive Director, of the Davis Phinney Foundation during a webinar organized by the Parkinson Social Network (PSN).

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A New Look with More to Offer at ASoftVoice.com

2020, Parkinson's Disease, Wellness, Young Onset Parkinson's 2 comments

Our site has undergone a big redesign to improve your experience and navigation with much more to come.  As one of the early blogs on Parkinson’s disease that is written by a person with the illness, it was released in 2008.

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Getting What You Need-Support

2020, Education & Support, Living Well, Mind Body Spirit, Parkinson's Disease, Self Care, Support Groups, Young Onset Parkinson's

The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.

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Sandy beach picture

Accept Your Mission! It’s Not Impossible! Focus Your Energy, Wisely!

2018, Education & Support, Featured, Health, Motivation Monday, Parkinson's Disease, Philosophy, Wellness, Young Onset Parkinson's 2 comments

If you are embarrassed, sad, shamed, or lack self confidence about having Parkinson’s, I am here to tell you that you don’t have the energy or time to devote to such unproductive emotions.

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Nutrition matters

5 Tips Parkinson’s Patients Should Know

2017, Checklists, Education, Education & Support, Health, Living Well, Parkinson's Disease, Philosophy, Tips, Wellness, Young Onset Parkinson's

Parkinson’s disease comes with so many unwritten rules. Trying to find all that you need to know about this illness, all in one place, may be frustrating to collect. There is so much to remember and so much that you might forget.

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Christmas Lights

10 Holiday Suggestions For Those Dealing With Parkinson’s Disease

2015, Apps, Education, Education & Support, Health, Holidays, Media & Trends, Medications, Mind Body Spirit, Parkinson's Disease, Philosophy, Support Groups, Wellness, Young Onset Parkinson's

The added pressure of trying to produce “the right gift” and to cook “the right meal” on top of dealing with your Parkinson’s disease probably isn’t of benefit to your condition…

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A Look At Young Onset Parkinson’s Disease

2015, Education & Support, Parkinson's Disease, Philosophy, Young Onset Parkinson's

At the time of my diagnosis, I was said to be in the rare two percentile of patients. Now, according to the Parkinson’s Disease Foundation (PDF) it is estimated four percent of people with PD are diagnosed before the age of 50. It is estimated that 60,000 new cases are diagnosed a year and somewhere between 1 million to 1.5 million people in the United States are living with it.

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