Category: Young Onset Parkinson’s

Young Onset Parkinson’s

Interview with Jon Braddock Title Slide

Conversation with Jon Braddock, Author, Welcome to the YOPD Club

2022, Featured, Inspiring Stories, Interviews, Parkinson's Disease, Young Onset Parkinson's, YouTube

A conversation with author Jon Braddock. After his diagnosis with #YOPD, wrote a collection of 10 interviews to gain some perspective and to better understand from those who were living with young onset Parkinson’s.

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Picture of Dr Ray Dorsey Neurologist, Researcher and Author

Interview with Dr. Ray Dorsey, Neurologist and Co-Author of Ending Parkinson’s Disease!

2021, Education, Featured, Health, Interviews, Parkinson's Disease, Politics, Research, Videos, Young Onset Parkinson's, YouTube 2 comments

Karl Robb and Angela Robb interview Dr. Ray Dorsey, who is a Parkinson’s Disease neurologist, researcher, and author. Dr. Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the University of Rochester Medical Center and co-author of the book Ending Parkinson’s Disease: A Prescription for Action.

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Promotional Slide for Polly Dawkins provided by Parkinson Social Network

Building Your Parkinson’s Virtual Wellness Plan with Polly Dawkins via Parkinson Social Network (PSN)

2020, Education & Support, Living Well, Parkinson's Disease, Self Care, Wellness, Young Onset Parkinson's

Angela and I were the hosts for speaker Polly Dawkins, Executive Director, of the Davis Phinney Foundation during a webinar organized by the Parkinson Social Network (PSN).

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A New Look with More to Offer at ASoftVoice.com

2020, Parkinson's Disease, Wellness, Young Onset Parkinson's 2 comments

Our site has undergone a big redesign to improve your experience and navigation with much more to come.  As one of the early blogs on Parkinson’s disease that is written by a person with the illness, it was released in 2008.

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Getting What You Need-Support

2020, Education & Support, Living Well, Mind Body Spirit, Parkinson's Disease, Self Care, Support Groups, Young Onset Parkinson's

The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.

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Nutrition matters

5 Tips Parkinson’s Patients Should Know

2017, Checklists, Education, Education & Support, Health, Living Well, Parkinson's Disease, Philosophy, Tips, Wellness, Young Onset Parkinson's

Parkinson’s disease comes with so many unwritten rules. Trying to find all that you need to know about this illness, all in one place, may be frustrating to collect. There is so much to remember and so much that you might forget.

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Christmas Lights

10 Holiday Suggestions For Those Dealing With Parkinson’s Disease

2015, A Soft Voice book, Apps, Education, Education & Support, Health, Media & Trends, Medications, Mind Body Spirit, Parkinson's Disease, Philosophy, Support Groups, Wellness, Young Onset Parkinson's

The added pressure of trying to produce “the right gift” and to cook “the right meal” on top of dealing with your Parkinson’s disease probably isn’t of benefit to your condition. I know from experience, that when I am overloaded with a laundry list of to-do items and I am facing deadlines, stress and tension builds higher and higher – only to make my PD worsen.

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A Look At Young Onset Parkinson’s Disease

2015, Education & Support, Parkinson's Disease, Philosophy, Young Onset Parkinson's

At the time of my diagnosis, I was said to be in the rare two percentile of patients. Now, according to the Parkinson’s Disease Foundation (PDF) it is estimated four percent of people with PD are diagnosed before the age of 50. It is estimated that 60,000 new cases are diagnosed a year and somewhere between 1 million to 1.5 million people in the United States are living with it.

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10 Observations For People With Parkinson’s To Consider

2015, Education, Education & Support, Health, Parkinson's Disease, Philosophy, Young Onset Parkinson's One comment

These are just a few of my observations from living with Parkinson’s disease for over 30 years. I hope you find them to be of help and encourage you to share what have learned with me and my readers.

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Why Did The Medication Stop Working So Fast–The Antibiotic Dilemma

2015, Advocacy, Education, Education & Support, Health, Medications, Parkinson's Disease, Wellness, Young Onset Parkinson's 2 comments

When my medications turned off immediately for no apparent reason, I was befuddled and beyond worried. Not long ago a good friend experienced the same perplexing event with no medical forewarning.

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10 Minutes May Exceed 10 Benefits!

2015, Education, Education & Support, Health, Mind Body Spirit, Parkinson's Disease, Self Care, Wellness, Young Onset Parkinson's One comment

I have strategies to counteract Parkinson’s disease, but like most of us, I falter and forget to use them. I am exploring a 10 minute a day mind and body exercise program to see if just adding this short time can improve my day.

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No Holiday For Parkinson’s Awareness

2015, Advocacy, Awareness Month, Education, Education & Support, Health, Media & Trends, Parkinson's Disease, Philosophy, Politics, Wellness, Young Onset Parkinson's One comment

Those of us living with the illness as well as our care partners, caregivers, and close relatives, are all well aware of the physical, the mental, and the spiritual toll that Parkinson’s can take.

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