The following is an extensive list of resources that my researcher, partner, soul mate, best friend, carepartner, and spouse, Angela Robb, has accumulated and has graciously shared here with us.
At this time, where online sharing and learning has gone berserk, this list is up to date but impossible to be totally complete. We plan to add items as we find new resources.
Thank you!
Movement or Exercise Instruction Online
- Dance for PD – Every day of the week, the Mark Morris Dance Group offers Dance for PD classes available online via Zoom. See their website for more details and schedule.
- Parkinson Foundation has launched PD Health @ Home with online events with Mindfulness Mondays, Wellness Wednesdays, and Fitness Fridays
- Rock Steady On Your Own Exercise Series (RSBROX) – Doing exercises on your own at home while being safe!
- Resources for Self-managing your Parkinson’s during the COVID-19 outbreak – Parkinson Society British Columbia
- Neuro Challenge Foundation for Parkinson’s – Offers virtual exercise classes throughout the week online.
Voice Practices Online
- Parkinson Voice Project – 10am CDT (11am EDT) Monday – Friday – Daily speech practices with Samantha Elandary MA, CCC-SLP via Facebook LIVE. Archived Facebook sessions can be found on the Parkinson Voice Project website.
For Caregivers:
- Visionary Caregivers Connect Time – Each Thursday at 10am EDT on Zoom: Hosted by fellow caregivers Katherine Autin, Vicky Spencer-Rouse, and Joy Walters via Zoom.
- Care Partner Virtual Panel Series – World Parkinson Coalition – Click here to register to view the entire 2020 series of events – Free event!
- Parkinson Society British Columbia – Various dates and times for educational seminars for caregivers.
- 2020 Online Care Partner Summit | Cumbre Para Cuidadores
May 16, 2020 12 pm – 3:30 pm eastern (11 am – 2:30 pm central, 10 am – 1:30 pm mountain, 9 am – 12:30 pm pacific)
Planning for the Unpredictable Path of Parkinson’s Caregiving
Registration (by May 15) is required to attend online event.
Webinars & Educational Programs
- Archived Webinars from The Davis Phinney Foundation
- Wellness Wednesdays – Each Wednesday at Noon EDT – Check our Facebook at noon to watch doctors discuss issues important to the Parkinson’s community. Archives of these online events are located at this link. – Parkinson Foundation
- Parkinson Society British Columbia – Various dates and times for educational seminars for those living with Parkinson’s and caregivers.
- Archived Webinars from the American Parkinson Disease Association (APDA)
- Parkinson Association of the Rockies – Archived and upcoming Webinars
- Dr. Gilbert Hosts Series: Dr. Rebecca Gilbert will be hosting Q&A sessions with various experts via Zoom on Mondays. There will be expert discussion, followed by Q&A with attendees. (April 20 (time TBD): Dr. Gilbert Hosts: COVID-19 & the Underserved with Dr. Natalie Diaz and Rosa Pena, MSW. Part of this program will be translated into Spanish, April 27, 12pm ET: Dr. Gilbert Hosts: DBS & COVID-19 with Dr. Jill Ostrem, May 4 (time TBD): Dr. Gilbert Hosts: Medication Management & COVID-19 with Cathi Thomas) – APDA
- Northwest Parkinson’s Foundation (NWPF) – List of online resources available.
Hobbies, Arts, & Entertainment
- Writing & Journaling: A Fun Way to Rediscover Your Inherent Creativity – Parkinson Society British Columbia
Covid-19/Coronavirus Information
- Michael Okun speaks about Coronavirus – Archived Video – Parkinson Foundation
- Covid-19 & Parkinson’s – American Parkinson Disease Association (APDA)
- Brain & Life Online Magazine – American Academy of Neurology
- Resources for Self-managing your Parkinson’s during the COVID-19 outbreak – Parkinson Society British Columbia
New Articles from People Living with Parkinson’s:
Parkinson’s Diva Secret to Stress Free Living During Pandemic: By M. De Leon
A Balancing act:Life, medicines and Pd by Maria De Leon
Ejercicios de alta intensidad para personas con enfermedad de Parkinson by defeatparkinsons
Different kind of hero : by S. Krisher
Articles of Interest from Parkinson Organizations:
- The Davis Phinney Foundation Blog/Articles – https://mailchi.mp/davisphinneyfoundation/blog-highlights-864304?e=105d5bb330
- Dr. Ray Dorsey’s telemedicine study.
- World Parkinson Congress blog – https://www.worldpdcongress.org/home – Article topics include: Intimacy during Coronavirus and Anxiety and Parkinson’s Staying Healthy during Unusual Times.
- Brain & Life Online Magazine – American Academy of Neurology
