The following is an extensive list of resources that my researcher, partner, soul mate, best friend, carepartner, and spouse, Angela Robb, has curated and has graciously shared here with us.
At this time, where online sharing and learning has gone berserk, this list is up to date but impossible to be totally complete. We plan to add items as we find new resources.
Thank you!
Movement or Exercise Instruction Online
- Dance for PD – Every day of the week, the Mark Morris Dance Group offers Dance for PD classes available online via Zoom. See their website for more details and schedule.
- Parkinson’s on the Move – Alexander Tressor (who has personal connection to Parkinson’s) offers a library of exercises that are available on his website.
- Parkinson Foundation has launched PD Health @ Home with online events with Mindfulness Mondays, Wellness Wednesdays, and Fitness Fridays
- Rock Steady On Your Own Exercise Series (RSBROX) – Doing exercises on your own at home while being safe!
- Resources for Self-managing your Parkinson’s during the COVID-19 outbreak – Parkinson Society British Columbia
- Neuro Challenge Foundation for Parkinson’s – Offers virtual exercise classes throughout the week online.
- Northwest Parkinson’s Foundation has Yoga, Tai Chi, and Feldenkrais classes available online. Visit their website for dates and more information.
- Power for Parkinson’s offers some free exercise resources online. They also host classes via membership. Visit their website for more information.
- PDBuzz
Voice Practices Online
- Parkinson Voice Project – 10am CDT (11am EDT) Monday – Friday – Daily speech practices with Samantha Elandary MA, CCC-SLP via Facebook LIVE or on the Parkinson Voice Project website. Archived sessions can be found on the Parkinson Voice Project website.
- Northwest Parkinson Foundation – Offers singing class via online. View their website for more information.
- The Tremble Clefs in Arizona offers 3 online choirs that are open to everyone with Parkinson’s. Click here for more information including date and times.
For Caregivers:
- 2nd Care Partner Virtual Panel Series starting March 4, 2021 – World Parkinson Coalition – Click here to register to view the entire 2021 series of events – Free event!
- The Davis Phinney Foundation is hosting a monthly care partners monthly meet up hosted by Connie Carpenter Phinney and special guests on the First Tuesday of each month. Click here for more information and to register.
- Parkinson Society British Columbia – Various dates and times for educational seminars for caregivers.
- Visionary Caregivers Connect Time – Each Thursday at 10am EDT on Zoom: Hosted by fellow caregivers Katherine Autin, Vicky Spencer-Rouse, and Joy Walters via Zoom.
Webinars & Educational Programs
- The Davis Phinney Foundation has invested in a massive expansion of their online events, seminars, webinars, podcasts, and more. It is well worth your time to check out their extensive offerings!!
- PDBuzz.com has an excellent and extensive listing of PD events online…check it out here.
- Parkinson Foundation Webinars and Online Events – Check out their Facebook page events. Archives of these online events are located at this link.
- The World Parkinson Coalition is offering many virtual events in 2021 including a multi-day virtual conference, caregiver series, and more.
- Parkinson Society British Columbia – Various dates and times for educational seminars for those living with Parkinson’s and caregivers.
- Parkinson’s Partners holds a monthly virtual support group event the 3rd Wednesday of each month from 1:30pm-3:00pm. Click here to register.
- Archived Webinars from the American Parkinson Disease Association (APDA)
- Parkinson Association of the Rockies – Archived and upcoming Webinars
- The American Parkinson Disease Association (APDA) offers webinars live and archived along with articles.
- Northwest Parkinson’s Foundation (NWPF) – List of online resources, covering many topics available.
Hobbies, Arts, & Entertainment
- Northwest Parkinson’s Foundation offers Art at Home classes online view the offering on their website.
Covid-19/Coronavirus Information
- Michael Okun speaks about Coronavirus – Archived Video – Parkinson Foundation
- Covid-19 & Parkinson’s – American Parkinson Disease Association (APDA)
- Brain & Life Online Magazine – American Academy of Neurology
- Resources for Self-managing your Parkinson’s during the COVID-19 outbreak – Parkinson Society British Columbia
- World Parkinson Congress blog – https://www.worldpdcongress.org/home – Article topics include: Intimacy during Coronavirus and Anxiety and Parkinson’s Staying Healthy during Unusual Times.
- Dr. Ray Dorsey’s telemedicine study.
New Articles from People Living with Parkinson’s:
Parkinson’s Diva Secret to Stress Free Living During Pandemic: By M. De Leon
A Balancing act: Life, medicines and Pd by Maria De Leon
Ejercicios de alta intensidad para personas con enfermedad de Parkinson by defeatparkinsons
Different kind of hero : by S. Krisher
