A New Year provides a new opportunity for staying on schedule in the New Year.
Author: Karl Robb
Karl Robb has had Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-one, he is a Parkinson’s disease advocate, an entrepreneur, an inventor, an author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and care partner, Angela Robb. He has blogged for ten years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net and is a contributor to PatientsLikeMe.com.
His blog, ASoftVoice.com, has been recognized four years in a row by Healthline.com as one of The Best Parkinson’s Blogs of 2018, 2017, 2016, and 2015! Healthline.com also listed the book A Soft Voice in a Noisy World in their list of Best Parkinson’s Disease Books of 2017! FeedSpot.com has recognized ASoftVoice.com for 2018 and 2017 as a Top 50 Parkinson’s Disease blog. Karl was a blogger for the 2016 World Parkinson Congress in Portland, Oregon. He is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States. He is also an advisor and consultant on Parkinson’s disease.
Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network based in Virginia. He was an active board member (6 years) and an advocate (18 years) with the Parkinson’s Action Network (PAN).
In his free time, he is a photographer, constant writer, longtime magician, and a practicing Reiki Jin Kei Do master.
Karl received a Bachelor of Arts degree in English from the University of North Carolina at Chapel Hill. He has been featured by The New York Post, BBC Radio, CBS News, National Public Broadcasting (NPR), in The New Republic magazine and NHK World Television, as well as several Washington, D.C., television stations.
You may reach Karl via email at asoftvoice@gmail.com, on Facebook, or contact him via Twitter @asoftvoicepd.
I’m available for speaking engagements to share my experience living with Parkinson’s disease. Please contact me at asoftvoice@gmail.com if you are interested in having me speak to your group, conference/symposium, or would like me to write an article for your newsletter or blog.
I am not a medical professional and this information is my personal view. I am just sharing my medical journey with you, the reader. I encourage you to seek all avenues that can benefit your condition.
Holiday Gifts To Consider 2025
Holiday Gifts To Consider – As we approach the holidays, we would like to offer you a series of gift suggestions for yourself and those who are close to you.
The Parkinson’s Plan by Dr. Ray Dorsey and Dr. Michael Okun
The Parkinson’s Plan makes the point that 90% of Parkinson’s disease cases may be preventable! It’s about time that we admit that we are not fully aware of what chemicals are doing to our bodies and our environment. This may be the most important book ever written on Parkinson’s disease!
Bill Moyers Gave Me A Gift That I Am Forever Grateful
Nobody covered a story like Bill Moyers! I will miss his calm and charming drawl.
A Book Title Can Have So Many Meanings
A Soft Voice in a Noisy World is a metaphor for finding a voice, especially in challenging circumstances like living with a condition like Parkinson’s Disease.
A Conversation with Kristine Meldrum, Author & Parkinson’s Exercise Professional
Kristine Meldrum the award-winning author of the book, Parkinson’s: How to Reduce Symptoms Through Exercise.
Parkinson’s in Under A Minute
Parkinson’s in Under a Minute is a short video information series about Parkinson’s disease – to shed light on some of the mysteries of Parkinson’s!
Delivering A Diagnosis Rewrite
We need a brand-new approach when delivering a diagnosis in the United States. Newly diagnosed people with any illness must be eased into a diagnosis along with options and available resources to further their education.
Parkinson’s disease Awareness Month 2025
April is Parkinson’s disease Awareness Month! Get involved with numerous projects going on all over the world! There is something to choose for everyone!
Christopher Reeve Documentary
As an admirer and long-time fan of Christopher Reeve, a moving new documentary of his strength and courage, renewed my passion for advocacy – reminding me of the amount of dedication, passion, and tenacity it takes to make change!
Appreciation, Gratitude, and Thanksgiving!
Appreciation, Gratitude, and Thanksgiving – Focus on what is good in your life and what you can do to make it better.
Our Parkinson’s Awareness Needs No Added Reminder
For those of us living with Parkinson’s disease 24-7, our awareness needs no added reminder.
April is Parkinson’s disease Awareness Month 2024
April is Parkinson’s disease Awareness Month! Get involved with numerous projects going on all over the world! There is something to choose for everyone!
Growing Old with Young Onset Parkinson’s disease – PMD Alliance
Our online event with PMD Alliance shares our knowledge and about growing old with Young Onset Parkinson’s disease.
Building Your Creativity, Joy, & Passion with Parkinson’s disease
Parkinson’s disease symptoms seem to vanish briefly, as I focus on the image at hand. It takes my complete attention.
Parkinson’s Do’s and Don’ts – Holiday Tips
If you want to stay on Santa’s good list, remain in your spouse’s or family’s good graces, or just want keep out of a holiday ER, these holiday tips may help!
Do We Have Control?
Do We Have Control? Today, accept that you are not in control and that the few things that you think that you have control of are enough.
Negotiations With Parkinson’s Disease May Take More Candor!
Parkinson’s disease can be disarming when it comes to being heard, being seen, and being understood!
Today is the Day to Make a Step Forward
Today is the day to make a step forward! #MotivationMonday ….
Messages of Gratitude
Messages of gratitude and thankfulness to friends and family are a wonderful way to begin the week #MotivationMonday
3 Pieces of Advice to Newly Diagnosed
3 Pieces of Advice to Newly Diagnosed #MotivationMonday
Goals and Facing Parkinson’s
Staying on top of our goals and keeping focused with Parkinson’s disease can be very difficult for many of us.
Routine and Facing Parkinson’s
You hear both Karl’s (a person with Parkinson’s) and Angela’s (a carepartner) unique perspectives about routine and facing Parkinson’s disease.
Mind Matters & Parkinson’s disease with Dr. Sarah Lageman
A conversation about mind matters & Parkinson’s disease with neuropsychologist, Dr. Sarah Lageman.
Be Open while Facing Parkinson’s
It is a difficult task to face Parkinson’s disease. Choosing to be open to learning to work around this illness may just be the key.
Facing Parkinson’s with the Help of Zoom
Facing Parkinson’s with the help of Zoom has nurtured connections and built friendships from all over the world.
Camaraderie of Others
If you choose to isolate yourself and avoid the camaraderie of others, you are missing a vital component of your support team. #MotivationMonday
Little Things – Facing Parkinson’s
Just a little thing like a few moments in a quiet park or a walk along the beach is a simple pleasure that can cut your stress and rejuvenate you for the day.
Facing Parkinson’s: Widening Your Perspective
Consider widening your perspective and exploring what you are attracted to and what you enjoy.
Facing Parkinson’s with the Tools of Humor and Music
Facing Parkinson’s may be easier by taking advantage of the tools of humor and music. Humor and music are wonderful tools that cost very little but are easily implemented into your day.
