I invite you to join me and my friends at Parkinson Voice Project (PVP) for
Author: Karl Robb
Karl Robb has had Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-one, he is a Parkinson’s disease advocate, an entrepreneur, an inventor, an author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and care partner, Angela Robb. He has blogged for ten years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net and is a contributor to PatientsLikeMe.com.
His blog, ASoftVoice.com, has been recognized four years in a row by Healthline.com as one of The Best Parkinson’s Blogs of 2018, 2017, 2016, and 2015! Healthline.com also listed the book A Soft Voice in a Noisy World in their list of Best Parkinson’s Disease Books of 2017! FeedSpot.com has recognized ASoftVoice.com for 2018 and 2017 as a Top 50 Parkinson’s Disease blog. Karl was a blogger for the 2016 World Parkinson Congress in Portland, Oregon. He is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States. He is also an advisor and consultant on Parkinson’s disease.
Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network based in Virginia. He was an active board member (6 years) and an advocate (18 years) with the Parkinson’s Action Network (PAN).
In his free time, he is a photographer, constant writer, longtime magician, and a practicing Reiki Jin Kei Do master.
Karl received a Bachelor of Arts degree in English from the University of North Carolina at Chapel Hill. He has been featured by The New York Post, BBC Radio, CBS News, National Public Broadcasting (NPR), in The New Republic magazine and NHK World Television, as well as several Washington, D.C., television stations.
You may reach Karl via email at asoftvoice@gmail.com, on Facebook, or contact him via Twitter @asoftvoicepd.
I’m available for speaking engagements to share my experience living with Parkinson’s disease. Please contact me at asoftvoice@gmail.com if you are interested in having me speak to your group, conference/symposium, or would like me to write an article for your newsletter or blog.
I am not a medical professional and this information is my personal view. I am just sharing my medical journey with you, the reader. I encourage you to seek all avenues that can benefit your condition.
A Passion for Pictures
For over forty years, I have had at least one camera in my hand. There is true joy in capturing a beautiful moment in nature and time. I lose myself in the moments behind the camera. Parkinson’s disease symptoms seem to vanish briefly, as I focus on the image at hand. It takes my complete attention.
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Are You A Little Lost? You Are Not Alone! We Are in Transition.
I find myself spinning my wheels rather than keeping focused on what I should be doing. The distractions are boundless. Procrastination has become far too easy!
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A Documentary that Brought Me Unexpected Lessons and Hope!
I was seeking something positive and uplifting to watch during this pandemic and year of uncertainty. I found the video that I needed, on Netflix.
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Remembering Our Animals
The animals in our lives can leave long lasting imprints that help to make us who we are. Our awareness for creating a connection with another animal awakens our character and that feeling of responsibility.
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The Mighty’s Guide to Parkinson’s Disease
The Mighty, one of the largest online information resources on various illnesses, recently launched their own Parkinson’s disease guide.
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The Home in Transition!
This pandemic has led us to turning our family homes into a workplace, an online schoolhouse, and with telemedicine, our doctor’s office. The safety and convenience of telemedicine have altered and changed life as we know it, for good.
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Change Brings Change
Change is inevitable. From my experience, people with Parkinson’s disease are not wild about change. I am not big on change, but I try to embrace innovations and new technology, as best as I can. Some changes are easier than others.
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A Parkinson’s Wellness Checklist
Self-care is a topic that I talk about quite a bit, on this blog. During these changing times, it can be easy to forget wellness tools and tips that we have in our toolbox.
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The New and Improved Tools & Resource page!
Stay informed and aware of what people with Parkinson’s disease are writing about, how they are dealing with the illness, and find information that may inspire or educate. Gain perspective and get unique views from people from all over the world.
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Mask It
Mask It -The number of infected and deaths from COVID-19 are staggering. If a mask means life or death, there really is no logical excuse for not wearing one. Once again, this pandemic shows that without severe caution and diligence, it will escalate with ease. This virus is not a joke and it is not just going to go away, like magic.
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Best Blogs on Parkinson’s 2020
A Soft Voice Chosen by Healthline.com as One of the Best Blogs on Parkinson’s Disease. Many thanks to you, my readers for making this possible and your continued support. I hope that I can provide you with positive and useful information. My goal is to empower and to offer a fresh perspective at how we handle and perceive our chronic illness.
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ZOOM Is Changing The Way We Communicate
ZOOM Is Changing The Way We Communicate by author and blogger Karl Robb – A Soft Voice in a Noisy World
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My First Online Doctor’s Visit – TeleHealth Makes Sense for Less Stress and Lower Expense
I asked Dr. Dorsey what his thoughts were on the rapid burst of telehealth popularity. His remarks were, that if you like using telemedicine for physician visits, to tell your representatives, so that we can keep this most beneficial technology.
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Hear It, Share It – Positive Daily Living (Part 4 of 4)
Chapter 29 offers some fresh perspectives and numerous suggestions on how we might make some changes in our daily lives. Voice actor, Doug Gochman does a wonderful job in expressing my words on the audio book.
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Hear It, Share It – How to Talk to Doctors (Part 3 of 4)
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
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Does Masking Have A New Meaning?
There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
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Hear It, Share It – (Part 2 of 4) – This Disease Isn’t Fair
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
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Hear It, Share It (Part 1 of 4): Timing in Parkinson’s Disease May be Everything
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
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My Droid Neighbors
Technology really can deliver, and Starship is proving it. This marvel of technology is providing
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Tools and Resources
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
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A Partial History in Tees
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
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It’s World Parkinson’s Day
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
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Losing An American Treasure—The Loss of John Prine
The 2020 pandemic has robbed us of my favorite living musician, the great John Prine.
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Sequestered Gratitude
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
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A Very Different Parkinson’s Awareness Month!
In just a matter of days, our world has been turned upside down and around
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Some things to watch on Netflix at this time.
If you have Netflix, here is a list of some suggestions to consider: As we
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Spread Love, Compassion, Care, and Kindness-Not the Virus!
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
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Trying to Process Shock, Loss, and Grief
Thinking that you are flexible and easy-going can be dramatically different until, you are challenged. Life has a way of sneaking in unexpected setbacks that knock your feet out from under you.
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The Missing Month–Where Have I Been?
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
