There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
In just a matter of days, our world has been turned upside down and around
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
Robin Morgan’s TED talk in 2015 is an eloquent expression of her poetic epiphanies from years with Parkinson’s disease. Her gentle cadence and masterful verbiage put her finger on many of the concerns, frustrations, and unknowns…
It’s a new year and the thought of those resolutions on the club napkin are but distant memories. Seriously, resolutions can be wonderful intentions yet only to create a burden that wasn’t the intention in the first place.
CarePartner/Caregiver Appreciation Those of us living with Parkinson’s disease and have a caregiver or care
Rock Steady Boxing and my coach, Alec Langstein (https://rocksteadynova.com/), have made me stronger, fitter, and quicker. There is a definite and noticeable improvement in my mobility, agility, and balance.
A Day of Parkinson’s Education in Williamsburg #parkinsons #education #support by Karl Robb – A Soft Voice in a Noisy World blog
Trust me, I am not a reminder service, nor am I a medical professional, but
On August 24th, in Philadelphia, PA, hundreds of people with Parkinson’s and those who care
WPC Kyoto 2019 I have had the good fortune to attend 3 World Parkinson Congresses:
Ben Franklin is quoted to having said: “Do not anticipate trouble or worry about
The following are 5 questions for writer/journalist, John Williams, who I met recently, at a
One question that I get all the time, is how to manage their diet with
Today is special because it is about spreading awareness about Parkinson’s Disease! I am so
Powerful words stay with us and in a world of sound bites, there is no
The month of April is upon us and this means a month of Parkinson’s awareness!
Trust, faith, hope, and diligence are four key components to seeing your way through any
When you bring hundreds of people together with Parkinson’s disease (PD) in one place, everything Parkinson’s seems normal and the world outside our hotel seemed odd. A peace came over us, where explaining ourselves to why we were doing what we were doing wasn’t necessary.
Expression and making our voice heard is hard enough but if you throw in a
Angela and I have been contributing articles to ParkinsonsDisease.net for almost two years. Health Union (HU)’s mission is to inspire people to live better with challenging health conditions.
We must live in the here and now, plan for our future, and treasure joys
Keep an open mind and always look for something new to your toolbox!