A Soft Voice In A Noisy World by Karl Robb Parkinson’s Disease

Are You A Little Lost? You Are Not Alone! We Are in Transition.

October 13, 2020 Karl Robb 2020, Living Well, Mind Body Spirit, Parkinson's Disease, Philosophy, Self Care, Wellness 4 comments

I find myself spinning my wheels rather than keeping focused on what I should be doing. The distractions are boundless. Procrastination has become far too easy!

The Mighty’s Guide to Parkinson’s Disease

August 27, 2020 Karl Robb 2020, Education, Education & Support, Health, Living Well, Medications, Mind Body Spirit, Parkinson's Disease, Self Care, The Mighty, Tips, Wellness

The Mighty, one of the largest online information resources on various illnesses, recently launched their own Parkinson’s disease guide.

The Home in Transition!

August 23, 2020 Karl Robb 2020, Comedy, Living Well, Mind Body Spirit, Parkinson's Disease, Philosophy, Self Care

This pandemic has led us to turning our family homes into a workplace, an online schoolhouse, and with telemedicine, our doctor’s office. The safety and convenience of telemedicine have altered and changed life as we know it, for good.

Change Brings Change

July 29, 2020 Karl Robb 2020, Mind Body Spirit, Parkinson's Disease, Philosophy

Change is inevitable. From my experience, people with Parkinson’s disease are not wild about change. I am not big on change, but I try to embrace innovations and new technology, as best as I can. Some changes are easier than others.

A Parkinson’s Wellness Checklist

July 20, 2020 Karl Robb 2020, Education & Support, Exercise, Health, Living Well, Mind Body Spirit, Parkinson's Disease, Self Care, Support Groups, Tips, Tools, Wellness

Self-care is a topic that I talk about quite a bit, on this blog. During these changing times, it can be easy to forget wellness tools and tips that we have in our toolbox.

The New and Improved Tools & Resource page!

July 8, 2020 Karl Robb 2020, Education, Education & Support, Health, Living Well, Parkinson's Disease, Research, Self Care, Support Groups, Wellness

Stay informed and aware of what people with Parkinson’s disease are writing about, how they are dealing with the illness, and find information that may inspire or educate. Gain perspective and get unique views from people from all over the world.

Best Blogs on Parkinson’s 2020

June 29, 2020 Karl Robb 2020, Media & Trends, Parkinson's Disease

A Soft Voice Chosen by Healthline.com as One of the Best Blogs on Parkinson’s Disease. Many thanks to you, my readers for making this possible and your continued support. I hope that I can provide you with positive and useful information. My goal is to empower and to offer a fresh perspective at how we handle and perceive our chronic illness.

Illustration of computer image with multiple human likenesses - istockphoto.com

ZOOM Is Changing The Way We Communicate

June 18, 2020 Karl Robb 2020, Apps, Education, Education & Support, Living Well, Media & Trends, Mind Body Spirit, Parkinson's Disease, Self Care, Support Groups

ZOOM Is Changing The Way We Communicate by author and blogger Karl Robb – A Soft Voice in a Noisy World

My First Online Doctor’s Visit – TeleHealth Makes Sense for Less Stress and Lower Expense

June 15, 2020 Karl Robb 2020, Apps, Education & Support, Health, Media & Trends, Parkinson's Disease, Politics, Self Care

I asked Dr. Dorsey what his thoughts were on the rapid burst of telehealth popularity. His remarks were, that if you like using telemedicine for physician visits, to tell your representatives, so that we can keep this most beneficial technology.

Hear It, Share It – Positive Daily Living (Part 4 of 4)

June 11, 2020 Karl Robb 2020, A Soft Voice book, Audio book, Education & Support, Featured, Hear It Share It, Parkinson's Disease

Chapter 29 offers some fresh perspectives and numerous suggestions on how we might make some changes in our daily lives. Voice actor, Doug Gochman does a wonderful job in expressing my words on the audio book.

Hear It, Share It – How to Talk to Doctors (Part 3 of 4)

June 4, 2020 Karl Robb 2020, A Soft Voice book, Audio book, Education & Support, Hear It Share It, Parkinson's Disease

Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.

Does Masking Have A New Meaning?

June 3, 2020 Karl Robb 2020, Education & Support, Mind Body Spirit, Parkinson's Disease, Philosophy

There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.

Hear It, Share It – (Part 2 of 4) – This Disease Isn’t Fair

May 28, 2020 Karl Robb 2020, A Soft Voice book, Audio book, Education & Support, Hear It Share It, Parkinson's Disease

We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.

Hear It, Share It (Part 1 of 4): Timing in Parkinson’s Disease May be Everything

May 21, 2020 Karl Robb 2020, A Soft Voice book, Audio book, Education & Support, Hear It Share It, Parkinson's Disease

During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.

Tools and Resources

April 21, 2020 Karl Robb 2020, Education & Support, Media & Trends, Parkinson's Disease

After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.

A Partial History in Tees

April 13, 2020 Karl Robb 2020, Education & Support, Media & Trends, Parkinson's Disease, Videos, Wellness

Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.

It’s World Parkinson’s Day

April 11, 2020 Karl Robb 2020, Education, Education & Support, Health, Mind Body Spirit, Parkinson's Disease, Philosophy, Self Care, Wellness

I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.

A Very Different Parkinson’s Awareness Month!

April 1, 2020 Karl Robb 2020, Education, Education & Support, Health, Living Well, Media & Trends, Mind Body Spirit, Parkinson's Disease, Philosophy, Self Care

In just a matter of days, our world has been turned upside down and around

Getting What You Need-Support

January 30, 2020 Karl Robb 2020, Education & Support, Featured, Living Well, Mind Body Spirit, Parkinson's Disease, Self Care, Support Groups, Young Onset Parkinson's

The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.

Saying It Gracefully Through Poetry—Robin Morgan’s TED Talk

January 16, 2020 Karl Robb 2020, Education, Education & Support, Health, Inspiring Stories, Media & Trends, Mind Body Spirit, Parkinson's Disease, Philosophy, Self Care, Videos, Wellness

Robin Morgan’s TED talk in 2015 is an eloquent expression of her poetic epiphanies from years with Parkinson’s disease. Her gentle cadence and masterful verbiage put her finger on many of the concerns, frustrations, and unknowns…

Ideas For The New Year

January 15, 2020 Karl Robb 2020, Education, Health, Living Well, Mind Body Spirit, Parkinson's Disease, Philosophy, Self Care, Wellness

It’s a new year and the thought of those resolutions on the club napkin are but distant memories. Seriously, resolutions can be wonderful intentions yet only to create a burden that wasn’t the intention in the first place.

It’s National Family Caregivers Month-Here are some thoughts!

November 22, 2019 Karl Robb A Soft Voice book, Dealing and Healing Workbook, Education, Education & Support, Health, Living Well, Mind Body Spirit, Parkinson's Disease, Philosophy, Self Care, Wellness

CarePartner/Caregiver Appreciation Those of us living with Parkinson’s disease and have a caregiver or care

Rock Steady Boxing is making a difference in my Parkinson’s disease!

November 4, 2019 Karl Robb Education, Education & Support, Exercise, Featured, Health, Inspiring Stories, Living Well, Mind Body Spirit, Parkinson's Disease, Self Care, Videos, Wellness 3 comments

Rock Steady Boxing and my coach, Alec Langstein (https://rocksteadynova.com/), have made me stronger, fitter, and quicker. There is a definite and noticeable improvement in my mobility, agility, and balance.