Living with Parkinson's Disease for over 40 years
Scroll this page to find recent articles
Our site has undergone a big redesign to improve your experience and navigation with much more to come. As one of the early blogs on Parkinson’s disease that is written by a person with the illness, it was released in 2008.
Nordic walking, pole walking, power walking, or whatever you may call it, the exercise is popular around the world, for good reason. Pole walking forces the walker to move with purpose and intent. Walking can strengthen, restore, improve balance, help with coordination, and force your body to connect with your thoughts.
I invite you to join me and my friends at
For over forty years, I have had at least one camera in my hand. There is true joy in capturing a beautiful moment in nature and time. I lose myself in the moments behind the camera. Parkinson’s disease symptoms seem to vanish briefly, as I focus on the image at hand. It takes my complete attention.
I find myself spinning my wheels rather than keeping focused on what I should be doing. The distractions are boundless. Procrastination has become far too easy!
I was seeking something positive and uplifting to watch during this pandemic and year of uncertainty. I found the video that I needed, on Netflix.
The animals in our lives can leave long lasting imprints that help to make us who we are. Our awareness for creating a connection with another animal awakens our character and that feeling of responsibility.
The Mighty, one of the largest online information resources on various illnesses, recently launched their own Parkinson’s disease guide.
This pandemic has led us to turning our family homes into a workplace, an online schoolhouse, and with telemedicine, our doctor’s office. The safety and convenience of telemedicine have altered and changed life as we know it, for good.
Change is inevitable. From my experience, people with Parkinson’s disease are not wild about change. I am not big on change, but I try to embrace innovations and new technology, as best as I can. Some changes are easier than others.
Self-care is a topic that I talk about quite a bit, on this blog. During these changing times, it can be easy to forget wellness tools and tips that we have in our toolbox.
Stay informed and aware of what people with Parkinson’s disease are writing about, how they are dealing with the illness, and find information that may inspire or educate. Gain perspective and get unique views from people from all over the world.
Mask It -The number of infected and deaths from COVID-19 are staggering. If a mask means life or death, there really is no logical excuse for not wearing one. Once again, this pandemic shows that without severe caution and diligence, it will escalate with ease. This virus is not a joke and it is not just going to go away, like magic.
A Soft Voice Chosen by Healthline.com as One of the Best Blogs on Parkinson’s Disease. Many thanks to you, my readers for making this possible and your continued support. I hope that I can provide you with positive and useful information. My goal is to empower and to offer a fresh perspective at how we handle and perceive our chronic illness.
ZOOM Is Changing The Way We Communicate by author and blogger Karl Robb – A Soft Voice in a Noisy World
I asked Dr. Dorsey what his thoughts were on the rapid burst of telehealth popularity. His remarks were, that if you like using telemedicine for physician visits, to tell your representatives, so that we can keep this most beneficial technology.
Chapter 29 offers some fresh perspectives and numerous suggestions on how we might make some changes in our daily lives. Voice actor, Doug Gochman does a wonderful job in expressing my words on the audio book.
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
Technology really can deliver, and Starship is proving it. This
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
The 2020 pandemic has robbed us of my favorite living
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
In just a matter of days, our world has been
If you have Netflix, here is a list of some
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
