After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
Tag: illness
A Partial History in Tees
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
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It’s World Parkinson’s Day
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
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Losing An American Treasure—The Loss of John Prine
The 2020 pandemic has robbed us of my favorite living musician, the great John Prine.
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Sequestered Gratitude
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
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A Very Different Parkinson’s Awareness Month!
In just a matter of days, our world has been turned upside down and around
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Spread Love, Compassion, Care, and Kindness-Not the Virus!
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
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Trying to Process Shock, Loss, and Grief
Thinking that you are flexible and easy-going can be dramatically different until, you are challenged. Life has a way of sneaking in unexpected setbacks that knock your feet out from under you.
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The Missing Month–Where Have I Been?
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
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Getting What You Need-Support
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
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Ideas For The New Year
It’s a new year and the thought of those resolutions on the club napkin are but distant memories. Seriously, resolutions can be wonderful intentions yet only to create a burden that wasn’t the intention in the first place.
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Season’s Greetings from Karl Robb at asoftvoice.com
Wishing all ASoftVoice.com readers a very Happy Holiday Season! From Karl Robb:
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Feeling Grateful-Happy Thanksgiving!
Being Thankful On the morning of this chilly windy Thanksgiving day, I want to express
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It’s National Family Caregivers Month-Here are some thoughts!
CarePartner/Caregiver Appreciation Those of us living with Parkinson’s disease and have a caregiver or care
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Rock Steady Boxing is making a difference in my Parkinson’s disease!
Rock Steady Boxing and my coach, Alec Langstein (https://rocksteadynova.com/), have made me stronger, fitter, and
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Remembering The Best Part of Ourselves
Today, 9-11, marks an historic and tragic event that not only shook America but the
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Alike but Different!
I can’t explain the connection that I have to these tiny but beautiful pieces of art. Nature and time have created a cornucopia of remarkable masterpieces.
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Protect Yourself from Summer Dangers
Trust me, I am not a reminder service, nor am I a medical professional, but
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Upcoming Victory Summit in Philadelphia
On August 24th, in Philadelphia, PA, hundreds of people with Parkinson’s and those who care
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Does the Parkinson’s Profile Exist?
I have been fortunate to meet hundreds of people over these thirty plus years with
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World Parkinson Congress (WPC) 2019 in Kyoto!
WPC Kyoto 2019 I have had the good fortune to attend 3 World Parkinson Congresses:
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The Mysterious Future
Ben Franklin is quoted to having said: “Do not anticipate trouble or worry about
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An Interview with journalist John Williams on his Parkinson’s journey and the common term that he created.
The following are 5 questions for writer/journalist, John Williams, who I met recently, at a
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An Informative Interview with Retired Dietitian, Kathrynne Holden
One question that get all the time, is how to manage their diet with medications,
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Parkinson’s Disease Awareness Month 2019
The month of April is upon us and this means a month of Parkinson’s awareness!
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Building blocks for a future for better health!
Trust, faith, hope, and diligence are four key components to seeing your way through any
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Conference Nirvana and The Real World!
When you bring hundreds of people together with Parkinson’s disease (PD) in one place, everything Parkinson’s seems normal and the world outside our hotel seemed odd. A peace came over us, where explaining ourselves to why we were doing what we were doing wasn’t necessary.
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Expression Choices
Expression and making our voice heard is hard enough but if you throw in a
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Who is paying the price?
I found this quote that I wrote a year ago or so. I had put
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Perpetuate Kindness!
Recently, I have been the recipient of kind acts from those who I don’t know.
