The urgency of patient care & research as we face Parkinson’s is a constant topic in our chronic condition community. How do we as a community start running to make accelerated progress in treatments and research in Parkinson’s?
Tag: education
The Many Voices Facing Parkinson’s Disease
There are many voices facing Parkinson’s Disease throughout our community with experiences, perspectives, research information, or helpful ideas that might improve your quality of life.
The Voices of Our Community series from ParkinsonsDisease.net
Watch these videos to learn more about these amazing people and how they are living with Parkinson’s disease!
Making The Most of Advocacy Opportunities!
Making The Most of Advocacy Opportunities – We must all do what we can to make a difference in improving, ourselves, our loved ones, our community, and our environment.
Conversation with Jon Braddock, Author, Welcome to the YOPD Club
A conversation with author Jon Braddock. After his diagnosis with #YOPD, wrote a collection of 10 interviews to gain some perspective and to better understand from those who were living with young onset Parkinson’s.
A Thought-Provoking Talk with Health Union’s CEO & Co-founder, Olivier Chateau
Watch a candid & inspiring conversation with CEO and co-founder of Health Union, Olivier Chateau. His exciting approach is novel, refreshing, and so insightful! Learn about how Health Union provides online communities and empowers people with chronic conditions.
Interview with Samantha Elandary, Founder & CEO, Parkinson Voice Project
Samantha Elandary MA, CCC-SLP is a passionate visionary in Richardson, Texas, as the Founder and CEO of Parkinson Voice Project
Interview with Dr. Ray Dorsey, Neurologist and Co-Author of Ending Parkinson’s Disease!
Karl Robb and Angela Robb interview Dr. Ray Dorsey, who is a Parkinson’s Disease neurologist, researcher, and author. Dr. Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the University of Rochester Medical Center and co-author of the book Ending Parkinson’s Disease: A Prescription for Action.
Practice Traffic Stops with Fairfax County Police
I was fortunate to be asked to be a participant in a Practice Traffic Stop. Awareness and understanding can improve everyone’s knowledge of Parkinson’s disease.
My New Way of Walking (to vary my routine), Thanks to Urban Poling
Nordic walking, pole walking, power walking, or whatever you may call it, the exercise is popular around the world, for good reason. Pole walking forces the walker to move with purpose and intent. Walking can strengthen, restore, improve balance, help with coordination, and force your body to connect with your thoughts.
The Mighty’s Guide to Parkinson’s Disease
The Mighty, one of the largest online information resources on various illnesses, recently launched their own Parkinson’s disease guide.
Mask It
Mask It -The number of infected and deaths from COVID-19 are staggering. If a mask means life or death, there really is no logical excuse for not wearing one. Once again, this pandemic shows that without severe caution and diligence, it will escalate with ease. This virus is not a joke and it is not just going to go away, like magic.
ZOOM Is Changing The Way We Communicate
ZOOM Is Changing The Way We Communicate by author and blogger Karl Robb – A Soft Voice in a Noisy World
Hear It, Share It – How to Talk to Doctors (Part 3 of 4)
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
Hear It, Share It – (Part 2 of 4) – This Disease Isn’t Fair
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
Hear It, Share It (Part 1 of 4): Timing in Parkinson’s Disease May be Everything
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
Tools and Resources
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
A Partial History in Tees
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
It’s World Parkinson’s Day
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
Sequestered Gratitude
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
Spread Love, Compassion, Care, and Kindness-Not the Virus!
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
Trying to Process Shock, Loss, and Grief
Thinking that you are flexible and easy-going can be dramatically different until, you are challenged. Life has a way of sneaking in unexpected setbacks that knock your feet out from under you.Â
The Missing Month–Where Have I Been?
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
Getting What You Need-Support
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
Season’s Greetings from Karl Robb at asoftvoice.com
Wishing all ASoftVoice.com readers a very Happy Holiday Season!
Feeling Grateful-Happy Thanksgiving!
Being Thankful On the morning of this chilly windy Thanksgiving
It’s National Family Caregivers Month-Here are some thoughts!
Take the time to show your love and gratitude for all that your caregivers do for you…
A Day of Parkinson’s Education in Williamsburg
A Day of Parkinson’s Education in Williamsburg #parkinsons #education #support by Karl Robb – A Soft Voice in a Noisy World blog
Remembering The Best Part of Ourselves
I treasure the wonderful camaraderie of pride and love for humanity that shone for that gorgeous but ever so brief moment in time.
Alike but Different!
I can’t explain the connection that I have to these tiny but beautiful pieces of art. Nature and time have created a cornucopia of remarkable masterpieces.
