Is there a Parkinson’s profile?

More Apps for Parkinson’s coming soon!

Is there a profile for the person who gets Parkinson’s disease (PD)?  It’s a question that I have put to some of America’s top Neurologists (not scientifically) and as expected some say that there may be a certain personality type and some say that there is no evidence for any type of profile. What if , just maybe, Science is missing a large component of the causal mystery of PD and that cause is even more than the suspect of genes and environmental toxins?

Having had PD for close to 25 years, I have met and spoken to several hundreds if not thousands about PD and their symptoms. Here is a discovery that I have  made and loosely base what I see as a potential profile for many of the people that I have met with PD:

  • People with Parkinson’s are consistently kind, sensitive, and compassionate.
  • People with Parkinson’s are achievers, driven, well-educated and well-informed.
  • People with Parkinson’s are problem-solvers, artists, creative, and people of innovation.

As much as I abhor labeling and profiling, maybe there is someting to this. I’m not a scientist, doctor,or anthropologist, but I can’t discount my observations and experiences.  What do you think? Please subscribe, comment, and share if you like my blog. Thanks.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-one, he is a Parkinson’s disease advocate, an entrepreneur, an inventor, an author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and care partner, Angela Robb. He has blogged for ten years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net and is a contributor to PatientsLikeMe.com. His blog, ASoftVoice.com, has been recognized four years in a row by Healthline.com as one of The Best Parkinson’s Blogs of 2018, 2017, 2016, and 2015! Healthline.com also listed the book A Soft Voice in a Noisy World in their list of Best Parkinson’s Disease Books of 2017! FeedSpot.com has recognized ASoftVoice.com for 2018 and 2017 as a Top 50 Parkinson’s Disease blog. Karl was a blogger for the 2016 World Parkinson Congress in Portland, Oregon. He is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States. He is also an advisor and consultant on Parkinson’s disease. Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network based in Virginia. He was an active board member (6 years) and an advocate (18 years) with the Parkinson’s Action Network (PAN). In his free time, he is a photographer, constant writer, longtime magician, and a practicing Reiki Jin Kei Do master. Karl received a Bachelor of Arts degree in English from the University of North Carolina at Chapel Hill. He has been featured by The New York Post, BBC Radio, CBS News, National Public Broadcasting (NPR), in The New Republic magazine and NHK World Television, as well as several Washington, D.C., television stations. You may reach Karl via email at asoftvoice@gmail.com, on Facebook, or contact him via Twitter @asoftvoicepd. I’m available for speaking engagements to share my experience living with Parkinson’s disease. Please contact me at asoftvoice@gmail.com if you are interested in having me speak to your group, conference/symposium, or would like me to write an article for your newsletter or blog. I am not a medical professional and this information is my personal view. I am just sharing my medical journey with you, the reader. I encourage you to seek all avenues that can benefit your condition.

Posted on July 28, 2010, in Education & Support, Health, Parkinson's Disease, Philosophy and tagged , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 2 Comments.

  1. My Mum had MSA and I spent a few years involved in the UK Parkinson’s Society.

    I wouldn’t want to say with any scientific certainty but I’d broadly agree with you on the profile of people with PD – although I’d wonder what was cause and effect.

    “People with Parkinson’s are consistently kind, sensitive, and compassionate” – yes, although I suspect there’s something about having a really serious disease which makes you a kinder person!

    “People with Parkinson’s are achievers, driven, well-educated and well-informed.” – I think that might be sampling bias. The people with Parkinson’s who you meet might be such, but I suspect it is those qualities which cause them to get out and meet people, and the people who aren’t like that are at home with Parkinson’s and you won’t get to meet them…

    “People with Parkinson’s are problem-solvers, artists, creative, and people of innovation.” – I’ve met both. I’ve met some stunningly smart people who have made real progress in managing their condition. I’ve also met some people who haven’t.

    Haven’t said all of that… I think your comments are more right than wrong, but I don’t know how you’d ever go about putting some scientific rigour into it.

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