My latest talk with my Neurologist and Movement Disorder Specialist, Dr. Randolph Stephenson, is so much more than a patient, a care partner, and a neurologist having a chat.
I asked Dr. Dorsey what his thoughts were on the rapid burst of telehealth popularity. His remarks were, that if you like using telemedicine for physician visits, to tell your representatives, so that we can keep this most beneficial technology.
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
In just a matter of days, our world has been turned upside down and around
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
CarePartner/Caregiver Appreciation Those of us living with Parkinson’s disease and have a caregiver or care
I treasure the wonderful camaraderie of pride and love for humanity that shone for that gorgeous but ever so brief moment in time.
I can’t explain the connection that I have to these tiny but beautiful pieces of art. Nature and time have created a cornucopia of remarkable masterpieces.
Trust me, I am not a reminder service, nor am I a medical professional, but
I have been fortunate to meet hundreds of people over these thirty plus years with
Ben Franklin is quoted to having said: “Do not anticipate trouble or worry about
One question that I get all the time, is how to manage their diet with
The month of April is upon us and this means a month of Parkinson’s awareness!
Trust, faith, hope, and diligence are four key components to seeing your way through any
When you bring hundreds of people together with Parkinson’s disease (PD) in one place, everything Parkinson’s seems normal and the world outside our hotel seemed odd. A peace came over us, where explaining ourselves to why we were doing what we were doing wasn’t necessary.
Expression and making our voice heard is hard enough but if you throw in a
I found this quote that I wrote a year ago or so. I had put
Recently, I have been the recipient of kind acts from those who I don’t know.
Appreciating those calm moments of the day, a good laugh, or even a brief nap, may seem simple daily occurrences that are the good stuff of life that we too often take for granted.
We must live in the here and now, plan for our future, and treasure joys
Keep an open mind and always look for something new to your toolbox!
Resilience and flexibility are two traits that we all have and often forget to use.
Be in the moment!