Routine has advantages. Routine makes a practice. A practice leads to becoming comfortable with the routine and finding the benefits of the practice.
In this Fall newsletter, check out the links to upcoming community events, thoughtful conversations, Fall Photo gallery, and What to Watch.
There will be days for everyone with or without illness that we don’t want to get out of bed. Then, there will be days where we surprise ourselves at our fortitude and drive. #MotivationMonday
Inspiration Alley is the exciting new part of our site dedicated to highlighting memorable audio, video, photos, and creative tools to teach, remind, laugh, and motivate!
A Soft Voice Chosen by Healthline.com as One of the Best Blogs on Parkinson’s Disease. Many thanks to you, my readers for making this possible and your continued support. I hope that I can provide you with positive and useful information. My goal is to empower and to offer a fresh perspective at how we handle and perceive our chronic illness.
I asked Dr. Dorsey what his thoughts were on the rapid burst of telehealth popularity. His remarks were, that if you like using telemedicine for physician visits, to tell your representatives, so that we can keep this most beneficial technology.
There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
The 2020 pandemic has robbed us of my favorite living musician, the great John Prine.
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
In just a matter of days, our world has been turned upside down and around
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
Thinking that you are flexible and easy-going can be dramatically different until, you are challenged. Life has a way of sneaking in unexpected setbacks that knock your feet out from under you.
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
It’s a new year and the thought of those resolutions on the club napkin are but distant memories. Seriously, resolutions can be wonderful intentions yet only to create a burden that wasn’t the intention in the first place.
Wishing all ASoftVoice.com readers a very Happy Holiday Season! From Karl Robb:
Being Thankful On the morning of this chilly windy Thanksgiving day, I want to express
CarePartner/Caregiver Appreciation Those of us living with Parkinson’s disease and have a caregiver or care
Rock Steady Boxing and my coach, Alec Langstein (https://rocksteadynova.com/), have made me stronger, fitter, and quicker. There is a definite and noticeable improvement in my mobility, agility, and balance.
Epic sports comeback stories are reminders for us all that sometimes the underdog wins. When in the face of adversity, when pressed, the team that you discount will surprise you and overcome the odds.
I treasure the wonderful camaraderie of pride and love for humanity that shone for that gorgeous but ever so brief moment in time.
I can’t explain the connection that I have to these tiny but beautiful pieces of art. Nature and time have created a cornucopia of remarkable masterpieces.
Trust me, I am not a reminder service, nor am I a medical professional, but
On August 24th, in Philadelphia, PA, hundreds of people with Parkinson’s and those who care
I have been fortunate to meet hundreds of people over these thirty plus years with
WPC Kyoto 2019 I have had the good fortune to attend 3 World Parkinson Congresses:
Ben Franklin is quoted to having said: “Do not anticipate trouble or worry about