A conversation about mind matters & Parkinson’s disease with neuropsychologist, Dr. Sarah Lageman.
Facing Parkinson’s: Self-Care
A big part of taking care of yourself is self-care. Making the decision to do your best and keep as active, strong, and flexible as you can for yourself and those who care about you.
5 Actions That I Do Everyday to Stay Better with A Chronic Illness
Routine has advantages. Routine makes a practice. A practice leads to becoming comfortable with the routine and finding the benefits of the practice.
One of the Most Underestimated Tools We Have
Laughter is the safest, cheapest, and most universal unprescribed tool that we can add to our toolkit for health! #MotivationMonday
Vacations Can Do Wonders
Even a brief vacation into nature can bring clarity, relaxation, and renewal! #MotivationMonday
Gratitude is the Fashion
Gratitude is the fashion that never goes out of style. #MotivationMonday
My 30 Year Anniversary of a Parkinson’s Diagnosis–with Gratitude
February 23, 2021 marked the 30th anniversary of my official diagnosis for having Young Onset Parkinson’s disease (YOPD).
Change Brings Change
Change is inevitable. From my experience, people with Parkinson’s disease are not wild about change. I am not big on change, but I try to embrace innovations and new technology, as best as I can. Some changes are easier than others.
A Parkinson’s Wellness Checklist
Self-care is a topic that I talk about quite a bit, on this blog. During these changing times, it can be easy to forget wellness tools and tips that we have in our toolbox.
ZOOM Is Changing The Way We Communicate
ZOOM Is Changing The Way We Communicate by author and blogger Karl Robb – A Soft Voice in a Noisy World
Hear It, Share It – How to Talk to Doctors (Part 3 of 4)
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
Does Masking Have A New Meaning?
There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
Hear It, Share It – (Part 2 of 4) – This Disease Isn’t Fair
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
Hear It, Share It (Part 1 of 4): Timing in Parkinson’s Disease May be Everything
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
Tools and Resources
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
A Partial History in Tees
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
It’s World Parkinson’s Day
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
Losing An American Treasure—The Loss of John Prine
The 2020 pandemic has robbed us of my favorite living
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
A Very Different Parkinson’s Awareness Month!
In just a matter of days, our world has been
Spread Love, Compassion, Care, and Kindness-Not the Virus!
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
Trying to Process Shock, Loss, and Grief
Thinking that you are flexible and easy-going can be dramatically different until, you are challenged. Life has a way of sneaking in unexpected setbacks that knock your feet out from under you.
The Missing Month–Where Have I Been?
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
Getting What You Need-Support
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
Ideas For The New Year
It’s a new year and the thought of those resolutions on the club napkin are but distant memories. Seriously, resolutions can be wonderful intentions yet only to create a burden that wasn’t the intention in the first place.
Season’s Greetings from Karl Robb at asoftvoice.com
Wishing all ASoftVoice.com readers a very Happy Holiday Season!
Feeling Grateful-Happy Thanksgiving!
Being Thankful On the morning of this chilly windy Thanksgiving
It’s National Family Caregivers Month-Here are some thoughts!
Take the time to show your love and gratitude for all that your caregivers do for you…
Rock Steady Boxing is making a difference in my Parkinson’s disease!
Rock Steady Boxing and my coach, Alec Langstein (https://rocksteadynova.com/), have made me stronger, fitter, and quicker. There is a definite and noticeable improvement in my mobility, agility, and balance.
A Day of Parkinson’s Education in Williamsburg
A Day of Parkinson’s Education in Williamsburg #parkinsons #education #support by Karl Robb – A Soft Voice in a Noisy World blog