February 23, 2021 marked the 30th anniversary of my official diagnosis for having Young Onset Parkinson’s disease (YOPD).
March Parkinson Community Events coming up this month from a variety of Parkinson organizations. #parkinsonawareness
Change is inevitable. From my experience, people with Parkinson’s disease are not wild about change. I am not big on change, but I try to embrace innovations and new technology, as best as I can. Some changes are easier than others.
Self-care is a topic that I talk about quite a bit, on this blog. During these changing times, it can be easy to forget wellness tools and tips that we have in our toolbox.
ZOOM Is Changing The Way We Communicate by author and blogger Karl Robb – A Soft Voice in a Noisy World
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
The 2020 pandemic has robbed us of my favorite living musician, the great John Prine.
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
In just a matter of days, our world has been turned upside down and around
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
Thinking that you are flexible and easy-going can be dramatically different until, you are challenged. Life has a way of sneaking in unexpected setbacks that knock your feet out from under you.
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
It’s a new year and the thought of those resolutions on the club napkin are but distant memories. Seriously, resolutions can be wonderful intentions yet only to create a burden that wasn’t the intention in the first place.
Wishing all ASoftVoice.com readers a very Happy Holiday Season! From Karl Robb:
Being Thankful On the morning of this chilly windy Thanksgiving day, I want to express
CarePartner/Caregiver Appreciation Those of us living with Parkinson’s disease and have a caregiver or care
Rock Steady Boxing and my coach, Alec Langstein (https://rocksteadynova.com/), have made me stronger, fitter, and quicker. There is a definite and noticeable improvement in my mobility, agility, and balance.
A Day of Parkinson’s Education in Williamsburg #parkinsons #education #support by Karl Robb – A Soft Voice in a Noisy World blog
Today, 9-11, marks an historic and tragic event that not only shook America but the
I can’t explain the connection that I have to these tiny but beautiful pieces of art. Nature and time have created a cornucopia of remarkable masterpieces.
Trust me, I am not a reminder service, nor am I a medical professional, but
On August 24th, in Philadelphia, PA, hundreds of people with Parkinson’s and those who care
I have been fortunate to meet hundreds of people over these thirty plus years with