After what felt like a very long hibernation, I await my release from an inordinately dark year. Thank you for the coming of Spring! – Karl Robb #MotivationMonday
Tag: Parkinson’s Disease
Learn about Neurogenic Orthostatic Hypotension (nOH) from an Advocate who is Living with nOH and Parkinson’s disease
#sponsored Read Keith’s journey with neurogenic orthostatic hypotension (nOH) and Parkinson’s on my blog today and learn how you & your healthcare team can manage this condition. #nOHMatters
Sensory Awareness
Outward influences have inward consequences. Be aware of the choices that you make! #MotivationMonday
Interview with Dr. Ray Dorsey, Neurologist and Co-Author of Ending Parkinson’s Disease!
Karl Robb and Angela Robb interview Dr. Ray Dorsey, who is a Parkinson’s Disease neurologist, researcher, and author. Dr. Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the University of Rochester Medical Center and co-author of the book Ending Parkinson’s Disease: A Prescription for Action.
My 30 Year Anniversary of a Parkinson’s Diagnosis–with Gratitude
February 23, 2021 marked the 30th anniversary of my official diagnosis for having Young Onset Parkinson’s disease (YOPD).
What We Are Capable Of!
There will be days for everyone with or without illness that we don’t want to get out of bed. Then, there will be days where we surprise ourselves at our fortitude and drive. #MotivationMonday
Practice Traffic Stops with Fairfax County Police
I was fortunate to be asked to be a participant in a Practice Traffic Stop. Awareness and understanding can improve everyone’s knowledge of Parkinson’s disease.
The Steeper the Climb
Sometimes our steepest climbs bring out the greatest lessons. We don’t really know what we are capable of until we are forced to risk our survival, our comfort, or being reliant on our own expediency. #MotivationMonday
Motivation Monday – It’s a new day. It’s a new year. It’s a new you!
It’s a new day. It’s a new year. It’s a new you! Finding our way around the roadblocks in our lives only makes us stronger. #MotivationMonday
Building Your Parkinson’s Virtual Wellness Plan with Polly Dawkins via Parkinson Social Network (PSN)
Angela and I were the hosts for speaker Polly Dawkins, Executive Director, of the Davis Phinney Foundation during a webinar organized by the Parkinson Social Network (PSN).
Announcing Inspiration Alley
Inspiration Alley is the exciting new part of our site dedicated to highlighting memorable audio, video, photos, and creative tools to teach, remind, laugh, and motivate!
A New Look with More to Offer at ASoftVoice.com
Our site has undergone a big redesign to improve your experience and navigation with much more to come. As one of the early blogs on Parkinson’s disease that is written by a person with the illness, it was released in 2008.
My New Way of Walking (to vary my routine), Thanks to Urban Poling
Nordic walking, pole walking, power walking, or whatever you may call it, the exercise is popular around the world, for good reason. Pole walking forces the walker to move with purpose and intent. Walking can strengthen, restore, improve balance, help with coordination, and force your body to connect with your thoughts.
A Passion for Pictures
For over forty years, I have had at least one camera in my hand. There is true joy in capturing a beautiful moment in nature and time. I lose myself in the moments behind the camera. Parkinson’s disease symptoms seem to vanish briefly, as I focus on the image at hand. It takes my complete attention.
Are You A Little Lost? You Are Not Alone! We Are in Transition.
I find myself spinning my wheels rather than keeping focused on what I should be doing. The distractions are boundless. Procrastination has become far too easy!
Remembering Our Animals
The animals in our lives can leave long lasting imprints that help to make us who we are. Our awareness for creating a connection with another animal awakens our character and that feeling of responsibility.
Change Brings Change
Change is inevitable. From my experience, people with Parkinson’s disease are not wild about change. I am not big on change, but I try to embrace innovations and new technology, as best as I can. Some changes are easier than others.
A Parkinson’s Wellness Checklist
Self-care is a topic that I talk about quite a bit, on this blog. During these changing times, it can be easy to forget wellness tools and tips that we have in our toolbox.
The New and Improved Tools & Resource page!
Stay informed and aware of what people with Parkinson’s disease are writing about, how they are dealing with the illness, and find information that may inspire or educate. Gain perspective and get unique views from people from all over the world.
Mask It
Mask It -The number of infected and deaths from COVID-19 are staggering. If a mask means life or death, there really is no logical excuse for not wearing one. Once again, this pandemic shows that without severe caution and diligence, it will escalate with ease. This virus is not a joke and it is not just going to go away, like magic.
Best Blogs on Parkinson’s 2020
A Soft Voice Chosen by Healthline.com as One of the Best Blogs on Parkinson’s Disease. Many thanks to you, my readers for making this possible and your continued support. I hope that I can provide you with positive and useful information. My goal is to empower and to offer a fresh perspective at how we handle and perceive our chronic illness.
ZOOM Is Changing The Way We Communicate
ZOOM Is Changing The Way We Communicate by author and blogger Karl Robb – A Soft Voice in a Noisy World
Hear It, Share It – How to Talk to Doctors (Part 3 of 4)
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
Does Masking Have A New Meaning?
There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
Hear It, Share It – (Part 2 of 4) – This Disease Isn’t Fair
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
Hear It, Share It (Part 1 of 4): Timing in Parkinson’s Disease May be Everything
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
Tools and Resources
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
It’s World Parkinson’s Day
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
Sequestered Gratitude
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
A Very Different Parkinson’s Awareness Month!
In just a matter of days, our world has been
