I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
Tag: Disease
Sequestered Gratitude
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
Spread Love, Compassion, Care, and Kindness-Not the Virus!
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
Trying to Process Shock, Loss, and Grief
Thinking that you are flexible and easy-going can be dramatically different until, you are challenged. Life has a way of sneaking in unexpected setbacks that knock your feet out from under you.
The Missing Month–Where Have I Been?
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
Getting What You Need-Support
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
Ideas For The New Year
It’s a new year and the thought of those resolutions on the club napkin are but distant memories. Seriously, resolutions can be wonderful intentions yet only to create a burden that wasn’t the intention in the first place.
Season’s Greetings from Karl Robb at asoftvoice.com
Wishing all ASoftVoice.com readers a very Happy Holiday Season!
Feeling Grateful-Happy Thanksgiving!
Being Thankful On the morning of this chilly windy Thanksgiving
Washington Nationals Win MLB World Championship!
Epic sports comeback stories are reminders for us all that sometimes the underdog wins. When in the face of adversity, when pressed, the team that you discount will surprise you and overcome the odds.
Remembering The Best Part of Ourselves
I treasure the wonderful camaraderie of pride and love for humanity that shone for that gorgeous but ever so brief moment in time.
Alike but Different!
I can’t explain the connection that I have to these tiny but beautiful pieces of art. Nature and time have created a cornucopia of remarkable masterpieces.
Protect Yourself from Summer Dangers
Trust me, I am not a reminder service, nor am
Upcoming Victory Summit in Philadelphia
On August 24th, in Philadelphia, PA, hundreds of people with
Does the Parkinson’s Profile Exist?
I have been fortunate to meet hundreds of people over
World Parkinson Congress (WPC) 2019 in Kyoto!
WPC Kyoto 2019 I have had the good fortune to
The Mysterious Future
Ben Franklin is quoted to having said: “Do not
An Interview with journalist John Williams on his Parkinson’s journey and the common term that he created.
The following are 5 questions for writer/journalist, John Williams, who I met recently, at a local Parkinson’s disease (PD) event, here in Fairfax, VA. We talked about how important it is to remain active and not to spend too much time on the couch! Learn about John’s well-known creation and his amazing career as a journalist.
An Informative Interview with Retired Dietitian, Kathrynne Holden
One question that I get all the time, is how
It’s World Parkinson’s Disease Day!
Today is special because it is about spreading awareness about
Parkinson’s Disease Awareness Month 2019
The month of April is upon us and this means
Building blocks for a future for better health!
Trust, faith, hope, and diligence are four key components to
Conference Nirvana and The Real World!
When you bring hundreds of people together with Parkinson’s disease (PD) in one place, everything Parkinson’s seems normal and the world outside our hotel seemed odd. A peace came over us, where explaining ourselves to why we were doing what we were doing wasn’t necessary.
Expression Choices
Expression and making our voice heard is hard enough but
Who is paying the price?
I found this quote that I wrote a year ago
Perpetuate Kindness!
Recently, I have been the recipient of kind acts from
It’s The Little Things That Aren’t So Little!
Appreciating those calm moments of the day, a good laugh, or even a brief nap, may seem simple daily occurrences that are the good stuff of life that we too often take for granted.
Messages to Ponder for 2019
Inspiration can come in many forms, be it words, photos,
Only 2 Days to Christmas!
We must live in the here and now, plan for
