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It has occurred to me that there are so many “experts” about Parkinson’s disease who don’t live with Parkinson’s on a daily basis. Why is there a deficit in recognizing that those living with Parkinson’s can be just as knowledgeable as those who study it? It’s a question that might sting a little, but who are the experts on living with Parkinson’s?
It’s wonderful to hear from psychologists, neurologists, and researchers, but overall, when the dust settles and the conferences end, who would you rather hear from? Who knows more about how to express their work of art, the artist or the critic? I think most of us would agree that the artist knows what they want to express while the critic is merely the interpreter who conveys their own perspective.
The newly diagnosed person with Parkinson’s and the one in denial are not yet experts, but that doesn’t mean that they can’t once be one. I don’t claim to be an expert but longevity with illness provides lessons whether you ask for them or not.