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A Day of Parkinson’s Education in Williamsburg

Last Saturday, my wife, Angela and I had the great privilege to address over 300 people with Parkinson’s and their carepartners/caregivers in beautiful and historic Williamsburg, VA at the American Parkinson Disease Association (APDA) Virginia Education Day.  This event was hosted by the APDA Hampton Roads Chapter and the APDA Richmond Metro Chapter.

Knowledge is Power - A Soft Voice.com

Angela and I participated in a couples talk with Charlie and Cammy Bryan, who are well known for their state-wide work, writing and advocacy. We really enjoyed working with them! The moderator, Don Bradway, knows both couples and did a masterful job of getting us to talk about our lives, perspectives on Parkinson’s disease, and our philosophy on living well with Parkinson’s. We got to meet so many amazing people who are living well with Parkinson’s!

Neurologists from around Virginia did an informative panel on understanding, managing, and living with Parkinson’s disease. My friend and fellow advocate, Bob Pearson did a talk with a neurologist on the importance of clinical trials and his experiences in participating in these studies. A clinical dietitian, Ms. Ka Wong from Hunter Holmes McGuire Veteran’s Affairs Medical Center in Richmond did a very informative talk on inflammation and diet.

The final breakout, held concurrently with the caregiving session, was a panel introduction to the benefits of a variety of therapies including PWR!, Rock Steady Boxing, Yoga, LSVT/BIG and SPEAKOUT!, and Tai Chi! My wife attended the caregiver session which was a panel discussion with three family caregivers. This panel shared their experiences on a variety of caregiver issues, provided informational tips and offered resources.

What was unique about this conference was the variety of people sharing their knowledge with our Parkinson’s community – those living with Parkinson’s, the medical community, allied health professionals and more. This event happens every other year and brings Virginia’s Parkinson’s community together to review the developments in Parkinson’s disease, to inform, to inspire, and to educate.

The Power of an Amazing Quote

Powerful words stay with us and in a world of sound bites, there is no doubt that a good quote leaves a lasting impact. Here is my video on The Power of an Amazing Quote. Words inspire, motivate, and invigorate. Good quotes are memorable and timeless.
I hope that you enjoy this reading! Feel free to share it – if you find this to be helpful!
Thank you!
– Karl

Health Union’s Living With podcast features Karl and Angela Robb

Angela and I have been contributing articles to ParkinsonsDisease.net for almost two years. Health Union (HU)’s mission is to inspire people to live better with challenging health conditions. The HU Living With podcast this week is from an interview we did last year at their headquarters.

You can find the podcast on:
Health Union Living With podcast

Health Union’s Living With podcast

In this podcast, we discuss relationships, living well with Parkinson’s disease, and a few tidbits that we have learned. Angela and Karl Robb have been married over 20 years and Karl has had Parkinson’s disease for over 30 years. Hear their outlook on illness and keeping positive.

Messages to Ponder for 2019

Inspiration can come in many forms, be it words, photos, audio, or video. In the coming year, this site will incorporate a wider use of these tools to add to the informational and entertainment aspects of this site. I truly hope that if you or someone you know is seeking information, support, inspiration, or a fresh perspective on Parkinson’s disease  and other chronic conditions, that you might consider sharing this website with those looking for articles on living with illness. The archives on this site contains nearly 400 articles to read on Parkinson’s and living with illness. If you are seeking more content, check out my recent articles on ParkinsonsDisease.net.

The following is a condensed video of many of my messages from my 12 Days of Christmas. I hope that you enjoy it and feel free to share it with anyone that you think might find benefit:

 

An Inspirational Magic Man

I believe that people come in and out of our lives for a reason. Often, they may have an important message to relay or an example to emulate. Whatever the case, if we pay close enough attention to those people that we encounter on a daily basis, we might just recognize what it is that we need to learn from the encounter.

As an avid amateur magician, I enjoy finding and visiting small local magic stores in cities that I may be visiting. I have been to close to a dozen small magic shops over the years, and I continually meet the most fascinating, entertaining, insightful individuals who also share my appreciation for the great art of performing magic. I met the owner of the last magic shop in North Carolina. This store is in Asheville, NC and is called Magic Central.

One of these amazing individuals that I was lucky enough to meet was a gentleman by the name of Ricky D Boone. Mr. Boone has been a professional magician for almost 40 years. Even more remarkable is the fact that Mr. Boone was born with a rare bone disease. His mother was told that he wouldn’t live to be 4. Ricky is 67 years old.

My selfie with magician Ricky D Boone at Magic Central, Ashville NC

My selfie with magician Ricky D Boone at Magic Central, Asheville NC

He is reliant on a wheelchair but to be in his company and to watch him work, all disability goes out the door. To see him perform magic looks so fluid and effortless. His humor and patter put him in control of the room, and the feeling is comforting. This is the sign of a true showman.

Ricky did card tricks for my wife and me. His sleight of hand ability was most impressive. I didn’t notice anything out of the ordinary. His patter was smooth and entertaining.

Ricky has received numerous awards and accolades for his performances and wonderful praise for his inspiring lectures. He is the recipient of two Emmy awards for a documentary on his life.

Ricky Boone is so much more than a magician. He is a model for us all in overcoming obstacles in our lives. He is a living miracle. Mr. Boone is a true inspiration to me, only after having the gift of getting to know him for about an hour. I am so grateful to have had the opportunity to meet a man with such spirit, grace, humor, compassion, and presence. Boone‘s charity, The Vanishing Wheelchair is an extension of his drive to help others break down barriers for the physically challenged, through the art of magic.

I am reading the book about Mr. Boone, The Four Foot Giant And The Vanishing Wheelchair by T.J. Shimeld. I am truly enjoying the book and plan to report more on this amazing man!

Ricky Boone is more than an entertainer – he’s an inspiration for us all!!

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