8 Tips That Could Save A Parkinson’s Disease Patient’s Life (or at least reduce severe injury)

1. Take the elevator and not the escalator! If you have balance issues, a hard dramatic fall is the last thing that you need to deal with–especially if you can avoid it.

2. It can be very easy to forget your meds or even take a double dose if you aren’t vigilant about your dosing. Keep a journal or daily dosing sheet.

3. St. John’s Wort, Kava kava,  and cold medicine products like, Dextromethorphan (contained in many over-the-counter cough medicines), may have severe side-effects. Check your packaging and the Web. This is not a medical website, so go to a medical site like www.webmd.com for the details. Read  your labels –especially on cold medicines.

4. Giving up the car keys is one of the hardest decisions that you will ever have to make! You don’t want to harm yourself but even more, you don’t want to hurt someone else. Be smart about when it is time to seek alternative transportation. It isn’t easy,  but you might just be saving many lives by relinquishing those keys! (See #8)

5. Stay out of the hospital as much as possible. If you have to–well—then you have to–but if you are choosing cosmetic surgery or any kind of surgery that isn’t totally necessary, consider avoiding the risk of the blade and anesthesia. Don’t tax your system more than you have to.

6. Limit your sun exposure, especially if you are on Parkinson’s meds. Eat your organic leafy greens to get your vitamin D and even dairy, but not too much direct sun–or dairy.

7. Monitor your stress, blood pressure, and sleep. They can all be related. Diet may play a factor as well. If you don’t have a home blood pressure monitor, you might consider picking one up on the web or your local drugstore. If you track it a few weeks before your next doctor visit, you can compare yours with the doctor’s reading.

8. In some States, telemedicine (doctor visits by Skype or camera/video programs) is becoming a reality that saves time, money, and travel. Ask your physician, Neurologist, or even local hospital if they have any kind of program that might work for you to be seen without being seen in the office.

Hey–I am Not a doctor (not that the money wouldn’t be nice and boy would my parents be proud). I’m just a guy with PD and a blog. If you like it, please share it with a friend. If you don’t like it, please share it with 2 or more friends.

This is not professional medical advice–it is my opinion from living with PD for over 25 years. Thanks for reading!  Join me on Twitter @asoftvoicepd

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-one, he is a Parkinson’s disease advocate, an entrepreneur, an inventor, an author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and care partner, Angela Robb. He has blogged for ten years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net and is a contributor to PatientsLikeMe.com. His blog, ASoftVoice.com, has been recognized four years in a row by Healthline.com as one of The Best Parkinson’s Blogs of 2018, 2017, 2016, and 2015! Healthline.com also listed the book A Soft Voice in a Noisy World in their list of Best Parkinson’s Disease Books of 2017! FeedSpot.com has recognized ASoftVoice.com for 2018 and 2017 as a Top 50 Parkinson’s Disease blog. Karl was a blogger for the 2016 World Parkinson Congress in Portland, Oregon. He is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States. He is also an advisor and consultant on Parkinson’s disease. Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network based in Virginia. He was an active board member (6 years) and an advocate (18 years) with the Parkinson’s Action Network (PAN). In his free time, he is a photographer, constant writer, longtime magician, and a practicing Reiki Jin Kei Do master. Karl received a Bachelor of Arts degree in English from the University of North Carolina at Chapel Hill. He has been featured by The New York Post, BBC Radio, CBS News, National Public Broadcasting (NPR), in The New Republic magazine and NHK World Television, as well as several Washington, D.C., television stations. You may reach Karl via email at asoftvoice@gmail.com, on Facebook, or contact him via Twitter @asoftvoicepd. I’m available for speaking engagements to share my experience living with Parkinson’s disease. Please contact me at asoftvoice@gmail.com if you are interested in having me speak to your group, conference/symposium, or would like me to write an article for your newsletter or blog. I am not a medical professional and this information is my personal view. I am just sharing my medical journey with you, the reader. I encourage you to seek all avenues that can benefit your condition.

Posted on January 30, 2012, in Uncategorized and tagged , , , , , , , , , , , , , , , . Bookmark the permalink. Leave a comment.

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