This pandemic has led us to turning our family homes into a workplace, an online schoolhouse, and with telemedicine, our doctor’s office. The safety and convenience of telemedicine have altered and changed life as we know it, for good.
Category: Parkinson’s Disease
Change Brings Change
Change is inevitable. From my experience, people with Parkinson’s disease are not wild about change. I am not big on change, but I try to embrace innovations and new technology, as best as I can. Some changes are easier than others.
A Parkinson’s Wellness Checklist
Self-care is a topic that I talk about quite a bit, on this blog. During these changing times, it can be easy to forget wellness tools and tips that we have in our toolbox.
The New and Improved Tools & Resource page!
Stay informed and aware of what people with Parkinson’s disease are writing about, how they are dealing with the illness, and find information that may inspire or educate. Gain perspective and get unique views from people from all over the world.
Best Blogs on Parkinson’s 2020
A Soft Voice Chosen by Healthline.com as One of the Best Blogs on Parkinson’s Disease. Many thanks to you, my readers for making this possible and your continued support. I hope that I can provide you with positive and useful information. My goal is to empower and to offer a fresh perspective at how we handle and perceive our chronic illness.
ZOOM Is Changing The Way We Communicate
ZOOM Is Changing The Way We Communicate by author and blogger Karl Robb – A Soft Voice in a Noisy World
My First Online Doctor’s Visit – TeleHealth Makes Sense for Less Stress and Lower Expense
I asked Dr. Dorsey what his thoughts were on the rapid burst of telehealth popularity. His remarks were, that if you like using telemedicine for physician visits, to tell your representatives, so that we can keep this most beneficial technology.
Hear It, Share It – Positive Daily Living (Part 4 of 4)
Chapter 29 offers some fresh perspectives and numerous suggestions on how we might make some changes in our daily lives. Voice actor, Doug Gochman does a wonderful job in expressing my words on the audio book.
Hear It, Share It – How to Talk to Doctors (Part 3 of 4)
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
Does Masking Have A New Meaning?
There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
Hear It, Share It – (Part 2 of 4) – This Disease Isn’t Fair
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
Hear It, Share It (Part 1 of 4): Timing in Parkinson’s Disease May be Everything
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
Tools and Resources
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
A Partial History in Tees
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
It’s World Parkinson’s Day
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
A Very Different Parkinson’s Awareness Month!
In just a matter of days, our world has been
Getting What You Need-Support
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
Saying It Gracefully Through Poetry—Robin Morgan’s TED Talk
Robin Morgan’s TED talk in 2015 is an eloquent expression of her poetic epiphanies from years with Parkinson’s disease. Her gentle cadence and masterful verbiage put her finger on many of the concerns, frustrations, and unknowns…
Ideas For The New Year
It’s a new year and the thought of those resolutions on the club napkin are but distant memories. Seriously, resolutions can be wonderful intentions yet only to create a burden that wasn’t the intention in the first place.
It’s National Family Caregivers Month-Here are some thoughts!
Take the time to show your love and gratitude for all that your caregivers do for you…
Rock Steady Boxing is making a difference in my Parkinson’s disease!
Rock Steady Boxing and my coach, Alec Langstein (https://rocksteadynova.com/), have made me stronger, fitter, and quicker. There is a definite and noticeable improvement in my mobility, agility, and balance.
A Day of Parkinson’s Education in Williamsburg
A Day of Parkinson’s Education in Williamsburg #parkinsons #education #support by Karl Robb – A Soft Voice in a Noisy World blog
Protect Yourself from Summer Dangers
Trust me, I am not a reminder service, nor am
Upcoming Victory Summit in Philadelphia
On August 24th, in Philadelphia, PA, hundreds of people with
World Parkinson Congress (WPC) 2019 in Kyoto!
WPC Kyoto 2019 I have had the good fortune to
The Mysterious Future
Ben Franklin is quoted to having said: “Do not
An Interview with journalist John Williams on his Parkinson’s journey and the common term that he created.
The following are 5 questions for writer/journalist, John Williams, who I met recently, at a local Parkinson’s disease (PD) event, here in Fairfax, VA. We talked about how important it is to remain active and not to spend too much time on the couch! Learn about John’s well-known creation and his amazing career as a journalist.
An Informative Interview with Retired Dietitian, Kathrynne Holden
One question that I get all the time, is how
It’s World Parkinson’s Disease Day!
 Today is special because it is about spreading awareness about
The Power of an Amazing Quote
Powerful words stay with us and in a world of
