Category Archives: living well

Hear It, Share It – How to Talk to Doctors (Part 3 of 4)

Knowledge is Power - A Soft Voice.com

It’s week 3 in my Hear It, Share It series. My goal for this series was to share some chapters of my audiobook (for free/no download) with you in hopes to help during this Coronoavirus pandemic. I hope you’ve enjoyed listening to these chapters and found something to take away!

Even though my book with this chapter was released in 2012, the information remains timely and pertinent for telehealth visits as well as in-person appointments. Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety. Click the play button below to hear voice actor/narrator, Doug Gochman read Chapter 9:

If you missed the first two parts of the series, you can use these links to go back and listen:

Part 1: Timing in Parkinson’s Disease May be Everything
Part 2: This Disease Isn’t Fair

Please feel free to comment about this chapter and share your own tips on how you talk with your doctor(s) by clicking the Leave a Comment button below. Share this post with others by clicking the share buttons on the right.

Come back next Thursday to hear the final installment in this audiobook sharing series! If you subscribe to the blog today, you will receive automatic notification when the next post is released.


I am not a doctor and this is not medical advice. This is my personal opinion that I’ve developed as I’ve lived with Parkinson’s disease for over 30 years.

Hear It, Share It – (Part 2 of 4) – This Disease Isn’t Fair

Today’s posting is part two of the four chapters I am sharing from my audio book, A Soft Voice in a Noisy World – A Guide to Dealing and Healing with Parkinson’s Disease. This week’s chapter is about the fairness of Parkinson’s.

What is Fair?

We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair. Parkinson’s disease, for over 30 years, has taught me that as difficult as some lessons are to learn, they’ve helped me to grow.

Click the play button below to hear voice actor/narrator, Doug Gochman read Chapter 12 to hear my perspective on fairness:

Chapter 12 – This Disease Isn’t Fair

If you missed the first post in this series, visit this link: Part 1 – Timing In Parkinson’s Disease May Be Everything

Please feel free to comment about this chapter by clicking the Leave a Comment button below. If you liked this chapter, please share this post with others by clicking the share buttons on the right.

Next Week’s Chapter…

The next chapter in this series has some ideas on how to talk with your doctor. Come back next Thursday to hear the next installment! If you subscribe to the blog today, you will receive automatic notification when the next post is released.

Hear It, Share It (Part 1 of 4): Timing in Parkinson’s Disease May be Everything

During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep. It isn’t easy with constant distractions. The refrigerator constantly trying to lure me, the phone ringing with robocalls, trying to work, and timing my medications – all at once – they all pull at me!

Listen to the Audio Series

So, for the next four weeks, I will be sharing a chapter from my audio book, A Soft Voice in a Noisy World – A Guide to Dealing and Healing with Parkinson’s Disease that I think might be helpful. This week’s chapter is about dealing with timing in Parkinson’s.

Timing is Important

Timing your medicine, your diet, your exercise, your sleep, and your work are a challenge that takes some self-discovery. Click the play button below to hear voice actor/narrator, Doug Gochman read Chapter 15 of my book, to get some ideas on timing:

Chapter 15: Timing in Parkinson’s Disease May be Everything

Keeping up on a simple daily regimen can feel like a full-time job in itself, and the longer you have this illness the more you’ll recognize the importance of being diligent in monitoring how you’re body is reacting to your medicines.

Karl Robb, A Soft Voice in a Noisy World

Please feel free to comment about this chapter and share your own tips on how you manage your daily timing by clicking the Leave a Comment button below. Share this post with others by clicking the share buttons on the right.

Next Week’s Chapter Hint…

The next chapter in this series deals with the dilemma of weighing the fairness of living with a chronic condition. Come back next Thursday to hear the next installment!

If you subscribe to the blog today, you will receive automatic notification when the next post is released.

My Droid Neighbors

Technology really can deliver, and Starship is proving it. This marvel of technology is providing an essential service, during this pandemic. My neighborhood in Virginia is being invaded by R2D2 lookalikes carrying meals from neighborhood restaurants. From coffee to ice cream these cute droids are aiming to please. This is innovation at it’s very best! GO ROBOTS!

At about 4 miles an hour, they zip down city sidewalks on target for delivery. What a date to praise the robot invasion—May the 4th be with you to all those techie and Star Wars lovers!

Tools and Resources

This pandemic has changed the world as we know it. There is no telling when quarantining will end and what will be the new normal. I have seen a few shining positives that have brought on what I hope will outlast the coronavirus outbreak.

After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity. Telehealth or telemedicine can reduce stress, anxiety, rush, travel time, germ exposure, and makes it easier for the carepartner. In trying times like these, heroes arise from selfless contributors, like the dedicated men and women facing the front-line of this virus, day after day.

As distance learning and remote access to information has quickly surged, I offer you a helpful list of ongoing classes, speech therapy, singing, relaxation, exercise, and socialization. This list of resources will hopefully help you to stay active, connected, and supported. Our list is a useful array of local, national, and regional online resources that may make your day, just a little better!

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