There is no question that Parkinson’s disease can be a tremendous struggle, filled with changes and developments. My theory is that when we ‘wage war, go to battle, or fight’, we highlight stress, violence, and turmoil.
Author: Karl Robb
Karl Robb has had Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-one, he is a Parkinson’s disease advocate, an entrepreneur, an inventor, an author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and care partner, Angela Robb. He has blogged for ten years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net and is a contributor to PatientsLikeMe.com.
His blog, ASoftVoice.com, has been recognized four years in a row by Healthline.com as one of The Best Parkinson’s Blogs of 2018, 2017, 2016, and 2015! Healthline.com also listed the book A Soft Voice in a Noisy World in their list of Best Parkinson’s Disease Books of 2017! FeedSpot.com has recognized ASoftVoice.com for 2018 and 2017 as a Top 50 Parkinson’s Disease blog. Karl was a blogger for the 2016 World Parkinson Congress in Portland, Oregon. He is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States. He is also an advisor and consultant on Parkinson’s disease.
Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network based in Virginia. He was an active board member (6 years) and an advocate (18 years) with the Parkinson’s Action Network (PAN).
In his free time, he is a photographer, constant writer, longtime magician, and a practicing Reiki Jin Kei Do master.
Karl received a Bachelor of Arts degree in English from the University of North Carolina at Chapel Hill. He has been featured by The New York Post, BBC Radio, CBS News, National Public Broadcasting (NPR), in The New Republic magazine and NHK World Television, as well as several Washington, D.C., television stations.
You may reach Karl via email at asoftvoice@gmail.com, on Facebook, or contact him via Twitter @asoftvoicepd.
I’m available for speaking engagements to share my experience living with Parkinson’s disease. Please contact me at asoftvoice@gmail.com if you are interested in having me speak to your group, conference/symposium, or would like me to write an article for your newsletter or blog.
I am not a medical professional and this information is my personal view. I am just sharing my medical journey with you, the reader. I encourage you to seek all avenues that can benefit your condition.
Back To School?
Back To School A phrase or term in
Nutrition, health, and news to come from World Parkinson Congress (WPC) and the Brian Grant Foundation (BGF)
Nutrition in general is a vital component to our daily health and to someone with Parkinson’s, diet is even more crucial. Staying hydrated and eating the right fruits and vegetables will keep your digestion active to help avoid constipation.
I Will Choose Will Become An Anthem of Strength & Hope
On occasion I get requests to endorse, promote, or mention
Changing Your Stripes
No matter what you want to call it, patterns, cycles,
Alaska Awareness
I am fresh back from Alaska where I was treated
Thought of the Day 2
Parkinson’s disease can force us to make major life alterations
Staying Social and Involved Is Empowering
Parkinson’s never asked me if it come and play,
It’s the kind of houseguest you wish would go away.
Missing
If you read my blog, I am a positive person but I see far too many friends disappearing from our community. As these voices go silent, it becomes easier for them to go missing.
Being Mindful plus Adding Knowledge
Keeping focus and staying mindful is a daily challenge for
Things Change
Modern medicine is remarkable and the leaps that we have made show great promise for our future.
Thought of the Day 1
Whether you have Parkinson’s disease or not in your life, I have discovered one important constant that makes a difference.
Monday Poem
Look beyond what you may not know. Keep an open mind and answers start to show.
Who Are The Parkinson’s “Experts”?
It has occurred to me that there are so many
Health and Healing
It will take change to make a difference in our own care. We can’t rely totally on Western medicine. You only see your neurologist a few times a year.
I Didn’t Volunteer For Parkinson’s
Parkinson’s disease has taught me so much about living! It has brought me a perspective, a purpose, and a focus!
Looking At Change
I for one, have never been great with change! The reality of the situation is that change happens whether I want it or not. The energy, time, emotion, and effort, that we spend could be used so much better if we didn’t chase what we know can’t be changed.
Making A Point!
Getting your point across is what we all strive to
Determining Health
Dealing with any illness, whether it is Parkinson’s or not, is not an easy task!
ASoftVoice.com Named In Best Parkinson’s Blogs of 2015!
I am so honored to be recognized with so many
5 Keys to Health
Consider this for your search for health and wellness:
Laughing feels good–but does more!
Laughter, giggles, chuckles, guffaws, and smiles are powerful tools for
No Holiday For Parkinson’s Awareness
Those of us living with the illness as well as our care partners, caregivers, and close relatives, are all well aware of the physical, the mental, and the spiritual toll that Parkinson’s can take.
10 Pieces of Parkinson’s Awareness
April has been declared to be Parkinson’s Awareness Month. So, I pose this question to you—what does that mean?
My Wife-Angela Robb, Recognized As A Champion of Change!
UPDATE! Just in case you missed it, here is the
Momentum
Monday mornings can be exciting or drudgery, depending upon your
A Friend’s Inspirational Story
Parkinson’s disease has given me many gifts, lessons, and opportunities. I am forever thankful for the amazing people that I have met and developed friendships with over the past 20+ years.
10 Suggestions to Improve the Doctor-Patient Visit (from a patient’s viewpoint)
10 Suggestions to Improve the Doctor-Patient Visit (from a patient’s viewpoint)
Take Time To Appreciate
The people that we encounter leave indelible impressions that can
