Blog Archives

Hear It, Share It (Part 1 of 4): Timing in Parkinson’s Disease May be Everything

During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep. It isn’t easy with constant distractions. The refrigerator constantly trying to lure me, the phone ringing with robocalls, trying to work, and timing my medications – all at once – they all pull at me!

Listen to the Audio Series

So, for the next four weeks, I will be sharing a chapter from my audio book, A Soft Voice in a Noisy World – A Guide to Dealing and Healing with Parkinson’s Disease that I think might be helpful. This week’s chapter is about dealing with timing in Parkinson’s.

Timing is Important

Timing your medicine, your diet, your exercise, your sleep, and your work are a challenge that takes some self-discovery. Click the play button below to hear voice actor/narrator, Doug Gochman read Chapter 15 of my book, to get some ideas on timing:

Chapter 15: Timing in Parkinson’s Disease May be Everything

Keeping up on a simple daily regimen can feel like a full-time job in itself, and the longer you have this illness the more you’ll recognize the importance of being diligent in monitoring how you’re body is reacting to your medicines.

Karl Robb, A Soft Voice in a Noisy World

Please feel free to comment about this chapter and share your own tips on how you manage your daily timing by clicking the Leave a Comment button below. Share this post with others by clicking the share buttons on the right.

Next Week’s Chapter Hint…

The next chapter in this series deals with the dilemma of weighing the fairness of living with a chronic condition. Come back next Thursday to hear the next installment!

If you subscribe to the blog today, you will receive automatic notification when the next post is released.

Parkinson’s Disease Is But A Detour On The GPS Of Life

If Parkinson’s disease teaches us anything it is the virtue of patience, the beauty of compassion, and the ever-present outpouring of sympathy for those who are less caring than ourselves. This is not said or thought out of any pretention but of years of strict observance.  Life, if you let it, allows us to become obsessed with trappings and incidentals, losing sight of the big picture. There are those who are too encumbered in their own egos to make the necessary changes in their lives to realize that not everything is about them. To the uninitiated, Parkinson’s disease appears to be but a curse when in reality this illness opens a window that for many of us was never there prior to being ill.

The Parkinson’s patient sees with different eyes, more sensitive eyes.  An enhanced perspective is gained when forced to dissect one’s past and speculate even more so on the future. No future is certain whether the individual is healthy or not. One may succumb to a host of unforeseen and unpredictable encounters that are or may be beyond our control. In reality, there is no true control and the future is but a hopeful myth. The present is what you make it –within reason. Beware of the unexpected roadblocks and pitfalls of our Candy Land childhood. There isn’t always a prize at the bottom of the cereal box but sometimes that just may be the prize itself. Rewards  are a bonus  without a guarantee. When one feels owed there is likely a chance for upheaval and discontent. Often, our expectations  set us up for disappointment thus throwing  our mental and physical balance out of whack. 

More often than not, I hear people diagnosed with Parkinson’s disease express how he or she worked for so many years and had planned out the golden years and now felt cheated out of retirement and the plans that they had made with their spouse, children, or others. Planning and dreaming can be wonderful fun but when reality and the potential and unexpected pitfalls of life step in, detours must be made. This is the reality of flexibility that comes with Parkinson’s and any other major life-changing illness.

  All that any human can truly hope for is to make a positive and lasting impact. Great thinkers and true visionaries have proven that the unconventional manner of thought often leads to innovation, and through innovation ultimately comes change. I don’t know where the innovation will come from and I can’t say when it will come about, but I do know that a greater understanding of those with and without illness need far more leniency, acceptance, and credibility.The road taken by those with illness is a journey far more challenging and sometimes more enlightening than that of the unchallenged life.

%d bloggers like this: