Posted by Karl Robb
It’s week 3 in my Hear It, Share It series. My goal for this series was to share some chapters of my audiobook (for free/no download) with you in hopes to help during this Coronoavirus pandemic. I hope you’ve enjoyed listening to these chapters and found something to take away!
Even though my book with this chapter was released in 2012, the information remains timely and pertinent for telehealth visits as well as in-person appointments. Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety. Click the play button below to hear voice actor/narrator, Doug Gochman read Chapter 9:
If you missed the first two parts of the series, you can use these links to go back and listen:
Please feel free to comment about this chapter and share your own tips on how you talk with your doctor(s) by clicking the Leave a Comment button below. Share this post with others by clicking the share buttons on the right.
Come back next Thursday to hear the final installment in this audiobook sharing series! If you subscribe to the blog today, you will receive automatic notification when the next post is released.
I am not a doctor and this is not medical advice. This is my personal opinion that I’ve developed as I’ve lived with Parkinson’s disease for over 30 years.
Posted in A Soft Voice book, Audio book, Education, Education & Support, Health, Hear It Share It, living well, Media & Trends, mind body spirit, Parkinson's Disease, Philosophy, research, self care, Wellness
Tags: 10 Suggestions to Improve the Doctor- Patient Visit (from the patient's viewpoint), a soft voice in a noisy world, A Soft Voice In A Noisy World by Karl Robb, doctor, doctors, Doug Gochman, educated, education, Getting What You Need-Support, Health, Hear It Share It, help, Karl Robb, parkinson, Parkinson's Disease, support, support team, team
Posted by Karl Robb
10 Tips to Improving Your Life with Parkinson’s Disease and Other Health Conditions
Parkinson’s disease is an illness that may require varying strategies. It may take new and different tactics to work with the ever-evolving changes that may pop up over time. Here are a few pieces of advice to consider as they may help you as they have helped me:
10) Intake Matters – Consider everything that you put into your body. Stay hydrated! Eat as cleanly as you can (local organic fresh vegetables, balanced diet, pay attention to your nutrition) and going easy on processed foods. Try reducing and even eliminating soft drinks. Avoid artificial sweeteners! Diet and Parkinson’s disease seem to go together; which makes complete sense, as reams of research seem to point to the gut as a possible culprit for the illness. Since going vegetarian, by vastly reducing my soft drink intake, increasing my water consumption, and reducing my reliance on processed foods, I have noticed digestion and medication absorption both, seem to have improved.
9) Keeping Social and Well – Informed – Creating and maintaining a social life keeps you involved, knowledgeable, engaged, and active. A social network and/or a support group is an opportunity to connect with other like-minded individuals who are dealing with your condition. Sharing information together provides you with a resource for experience and wisdom from those who are living with illness as well as those who are caring for loved ones. Having a sounding-board of experienced people can be very helpful when trying to learn about medications, navigate local resources, find therapies, and share stories about your health care providers. Seek support!
8) Lowering Your Stress Level and Keeping Anxiety Down – There are techniques and complementary therapies like massage, yoga, meditation, Reiki, and Tai chi, which can reduce stress anxiety, and calm the mind; these are but a few of the many therapies that you might consider trying. Several of these therapies can help teach breathing techniques and ways to lower anxiety. Finding that balance of your mind, body, and spirit can have a significant impact on your health.
7) Special Doctor – If you have Parkinson’s disease or another kind of movement disorder, find a neurologist who is specially trained as a Movement Disorder Specialist. They have extra training and an understanding in neurological disorders.
6) Keeping Positive – A positive attitude is contagious. Making the choice of staying positive and identifying the good instead of the negative is important to create a healthy and conducive environment. Remember that you have a choice!
5) Gratitude – Hold on to your joy for life and the gratitude for all that is in your life! Appreciate what may seem like small things but really are not, is a good start. Medicine, doctors, clean water and air, a good meal, friends, family, and just being alive are all to be appreciated. Add the awe of a sunrise, a sunset, a good laugh, great conversation, and helping someone else, are all acts to be cherished.
4) Doing What You Can – Do as much as you can, while you can, and maximize your good days! Take advantage of everyday and make the most of them!
3) Be Heard – Get involved in your community through advocacy groups, local organizations, and share your voice about your journey with illness. Educate those around you about your illness and encourage friends and family to learn with you on how to improve the Parkinson’s community.
2) Do Something – If you are in denial, apathetic, or depressed, it may be very difficult to motivate yourself to do what you need to do. It may be helpful to seek help from a counselor or someone who understands depression. This may take small victories and small steps. It may take learning about the disease in small chunks. Know this, that everyone’s journey is different and that you can’t gauge one patient by another. The more proactive and motivated you are, the more prepared you will be. Being flexible and staying open to new opportunities can be very helpful.
1) You are Not Powerless – Realize that you are in the driver’s seat to your healthcare! You must be your own best advocate and make sure that you are doing your very best. Be proactive with conventional medicine, skeptical but open to other non-invasive therapies, and a willingness for change. A little hope and faith can go a long way!
I really do believe that we have the power to help ourselves. We have the power locked inside ourselves, we just need the right key to unlock it. I think it is up to us to find that key.
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