A big part of taking care of yourself is self-care. Making the decision to do your best and keep as active, strong, and flexible as you can for yourself and those who care about you.
My latest talk with my Neurologist and Movement Disorder Specialist, Dr. Randolph Stephenson, is so much more than a patient, a care partner, and a neurologist having a chat.
April is Parkinson’s Awareness Month and I’m sharing a series called, Facing Parkinson’s. Each day, I will share a piece that I hope helps you as you face Parkinson’s disease.
Consider widening your perspective and exploring what you are attracted to and what you enjoy.
I was reminded that I have an obligation for young onset and newly diagnosed with Parkinson’s Disease, who might learn from my experience. I am dedicated, after 40 years of living with Parkinson’s disease, to offering assistance and benefit to the Parkinson’s community.
In Depth Discussion w/ Dr. Michael Okun, University of Florida, Chair of Neurology. A longtime friend and fellow author, Michael, Angela, and I discuss a wide range of topics from advocacy, complementary medicine/reiki, exercise, and so much more.
Routine has advantages. Routine makes a practice. A practice leads to becoming comfortable with the routine and finding the benefits of the practice.
Dr. Bradley McDaniels of the University of North Texas joins Angela and Karl Robb for a lively conversation about quality of life issues and Parkinson’s disease.
When we are facing Parkinson’s, there is so much information
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
I asked Dr. Dorsey what his thoughts were on the rapid burst of telehealth popularity. His remarks were, that if you like using telemedicine for physician visits, to tell your representatives, so that we can keep this most beneficial technology.
Watch these videos to learn more about these amazing people and how they are living with Parkinson’s disease!
Not for many years in my 30+ years of Parkinson’s disease have I seen a film that condenses and explains this mysterious illness so well.
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
Today’s Motivation Monday is on deciding to take charge of our lives. I am even asking you to make a decision. Had I chosen to believe that I was dealing with a chronic illness with no options, I would not be here thirty years later. I made a choice. #MotivationMonday
#sponsored Read Keith’s journey with neurogenic orthostatic hypotension (nOH) and Parkinson’s on my blog today and learn how you & your healthcare team can manage this condition. #nOHMatters
February 23, 2021 marked the 30th anniversary of my official diagnosis for having Young Onset Parkinson’s disease (YOPD).
You hear both Karl’s (a person with Parkinson’s) and Angela’s (a carepartner) unique perspectives about routine and facing Parkinson’s disease.
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
The difficulty with having Parkinson’s disease and aging is being able to distinguish what symptoms are treatable and which may be harbingers of an urgent red flag action.
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
In just a matter of days, our world has been
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
This pandemic has led us to turning our family homes into a workplace, an online schoolhouse, and with telemedicine, our doctor’s office. The safety and convenience of telemedicine have altered and changed life as we know it, for good.
Thinking that you are flexible and easy-going can be dramatically different until, you are challenged. Life has a way of sneaking in unexpected setbacks that knock your feet out from under you.
Take the time to show your love and gratitude for all that your caregivers do for you…
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
For over forty years, I have had at least one camera in my hand. There is true joy in capturing a beautiful moment in nature and time. I lose myself in the moments behind the camera. Parkinson’s disease symptoms seem to vanish briefly, as I focus on the image at hand. It takes my complete attention.