A big part of taking care of yourself is self-care. Making the decision to do your best and keep as active, strong, and flexible as you can for yourself and those who care about you.
Search Results for: doctors
Talking with my Neurologist, Dr. Randolph Stephenson!
My latest talk with my Neurologist and Movement Disorder Specialist, Dr. Randolph Stephenson, is so much more than a patient, a care partner, and a neurologist having a chat.
Facing Parkinson’s
April is Parkinson’s Awareness Month and I’m sharing a series called, Facing Parkinson’s. Each day, I will share a piece that I hope helps you as you face Parkinson’s disease.
Facing Parkinson’s: Widening Your Perspective
Consider widening your perspective and exploring what you are attracted to and what you enjoy.
For Young Onset and Newly Diagnosed with Parkinson’s Disease
I was reminded that I have an obligation for young onset and newly diagnosed with Parkinson’s Disease, who might learn from my experience. I am dedicated, after 40 years of living with Parkinson’s disease, to offering assistance and benefit to the Parkinson’s community.
In Depth Discussion w/ Dr. Michael Okun, University of Florida, Chair of Neurology
In Depth Discussion w/ Dr. Michael Okun, University of Florida, Chair of Neurology. A longtime friend and fellow author, Michael, Angela, and I discuss a wide range of topics from advocacy, complementary medicine/reiki, exercise, and so much more.
5 Actions That I Do Everyday to Stay Better with A Chronic Illness
Routine has advantages. Routine makes a practice. A practice leads to becoming comfortable with the routine and finding the benefits of the practice.
Conversation about Quality of Life Issues and Parkinson’s with Dr. Bradley McDaniels
Dr. Bradley McDaniels of the University of North Texas joins Angela and Karl Robb for a lively conversation about quality of life issues and Parkinson’s disease.
Facing Parkinson’s – Suggestions for Daily Living
When we are facing Parkinson’s, there is so much information
Hear It, Share It – How to Talk to Doctors (Part 3 of 4)
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
My First Online Doctor’s Visit – TeleHealth Makes Sense for Less Stress and Lower Expense
I asked Dr. Dorsey what his thoughts were on the rapid burst of telehealth popularity. His remarks were, that if you like using telemedicine for physician visits, to tell your representatives, so that we can keep this most beneficial technology.
The Voices of Our Community series from ParkinsonsDisease.net
Watch these videos to learn more about these amazing people and how they are living with Parkinson’s disease!
The Long Road to Hope: Ending Parkinson’s Disease documentary
Not for many years in my 30+ years of Parkinson’s disease have I seen a film that condenses and explains this mysterious illness so well.
Tools and Resources
After over a quarter of a century of advocating to Congress about the benefits of telehealth, your doctor visit by video has become a reality out of sheer necessity.
Making a choice!
Today’s Motivation Monday is on deciding to take charge of our lives. I am even asking you to make a decision. Had I chosen to believe that I was dealing with a chronic illness with no options, I would not be here thirty years later. I made a choice. #MotivationMonday
Learn about Neurogenic Orthostatic Hypotension (nOH) from an Advocate who is Living with nOH and Parkinson’s disease
#sponsored Read Keith’s journey with neurogenic orthostatic hypotension (nOH) and Parkinson’s on my blog today and learn how you & your healthcare team can manage this condition. #nOHMatters
My 30 Year Anniversary of a Parkinson’s Diagnosis–with Gratitude
February 23, 2021 marked the 30th anniversary of my official diagnosis for having Young Onset Parkinson’s disease (YOPD).
Routine and Facing Parkinson’s
You hear both Karl’s (a person with Parkinson’s) and Angela’s (a carepartner) unique perspectives about routine and facing Parkinson’s disease.
A Partial History in Tees
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
The Missing Month–Where Have I Been?
I am back, after taking almost a month-long adventure-road trip to Key West and back to Northern Virginia. For about 3 weeks, Angela, Lily, the Chocolate Lab, and I explored the Southeast coast and sucked up the warm breezes, compelling sunsets, and miles of open road.
Aging and Parkinson’s Disease (PD)
The difficulty with having Parkinson’s disease and aging is being able to distinguish what symptoms are treatable and which may be harbingers of an urgent red flag action.
It’s World Parkinson’s Day
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
Sequestered Gratitude
If you are complaining about being sequestered at home, be grateful that you have a home and a place to reside through this craziness.
A Very Different Parkinson’s Awareness Month!
In just a matter of days, our world has been
Getting What You Need-Support
The reality is that a well-run support group offers camaraderie, information, and a wisdom that comes from so many, all in one place. When you find a good group, it feels like another family and a place that you belong.
The Home in Transition!
This pandemic has led us to turning our family homes into a workplace, an online schoolhouse, and with telemedicine, our doctor’s office. The safety and convenience of telemedicine have altered and changed life as we know it, for good.
Trying to Process Shock, Loss, and Grief
Thinking that you are flexible and easy-going can be dramatically different until, you are challenged. Life has a way of sneaking in unexpected setbacks that knock your feet out from under you.Â
It’s National Family Caregivers Month-Here are some thoughts!
Take the time to show your love and gratitude for all that your caregivers do for you…
Spread Love, Compassion, Care, and Kindness-Not the Virus!
It is my hope that we choose to share compassion and kindness, in this time of need. This is our opportunity to reunify our nations and the entire planet.
A Passion for Pictures
For over forty years, I have had at least one camera in my hand. There is true joy in capturing a beautiful moment in nature and time. I lose myself in the moments behind the camera. Parkinson’s disease symptoms seem to vanish briefly, as I focus on the image at hand. It takes my complete attention.
