The difficulty with having Parkinson’s disease and aging is being able to distinguish what symptoms are treatable and which may be harbingers of an urgent red flag action.
The Mighty, one of the largest online information resources on various illnesses, recently launched their own Parkinson’s disease guide.
Karl Robb and Angela Robb interview Dr. Ray Dorsey, who is a Parkinson’s Disease neurologist, researcher, and author. Dr. Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the University of Rochester Medical Center and co-author of the book Ending Parkinson’s Disease: A Prescription for Action.
Once again, it’s World Parkinson’s Day! How are you going to educate and increase awareness of Parkinson’s Disease today?
Today is special because it is about spreading awareness about Parkinson’s Disease! I am so
During these uncertain times, now seemed the right time to share with you some words that might be of help. As we all are at home during this outbreak, I know I’m thinking about and discovering how to get back to a routine that I can keep.
My latest talk with my Neurologist and Movement Disorder Specialist, Dr. Randolph Stephenson, is so much more than a patient, a care partner, and a neurologist having a chat.
Our site has undergone a big redesign to improve your experience and navigation with much more to come. As one of the early blogs on Parkinson’s disease that is written by a person with the illness, it was released in 2008.
Samantha Elandary MA, CCC-SLP is a passionate visionary in Richardson, Texas, as the Founder and CEO of Parkinson Voice Project
The month of April is upon us and this means a month of Parkinson’s awareness!
March Parkinson Community Events coming up this month from a variety of Parkinson organizations. #parkinsonawareness
I was fortunate to be asked to be a participant in a Practice Traffic Stop. Awareness and understanding can improve everyone’s knowledge of Parkinson’s disease.
February 23, 2021 marked the 30th anniversary of my official diagnosis for having Young Onset Parkinson’s disease (YOPD).
In just a matter of days, our world has been turned upside down and around
Robin Morgan’s TED talk in 2015 is an eloquent expression of her poetic epiphanies from years with Parkinson’s disease. Her gentle cadence and masterful verbiage put her finger on many of the concerns, frustrations, and unknowns…
We are all tasked with some sort of physical, mental, or spiritual challenge in our lives at some point. Some events that we face are inexplicable and hard to fathom. Often, we categorize a level of what is fair or unfair.
I am 53 years old and was diagnosed with Parkinson’s disease at the age of 23. I have made it my mission to provide Parkinson’s awareness. Thirty plus years with Parkinson’s has taught me a great deal about living well with this chronic condition.
A Soft Voice Chosen by Healthline.com as One of the Best Blogs on Parkinson’s Disease. Many thanks to you, my readers for making this possible and your continued support. I hope that I can provide you with positive and useful information. My goal is to empower and to offer a fresh perspective at how we handle and perceive our chronic illness.
Sometimes our steepest climbs bring out the greatest lessons. We don’t really know what we are capable of until we are forced to risk our survival, our comfort, or being reliant on our own expediency. #MotivationMonday
Rock Steady Boxing and my coach, Alec Langstein (https://rocksteadynova.com/), have made me stronger, fitter, and quicker. There is a definite and noticeable improvement in my mobility, agility, and balance.
There is a common, unfunny, and overused joke about not playing poker with people who have Parkinson’s disease because many of us have reduced facial movement and it can be hard to read our expressions.
For over forty years, I have had at least one camera in my hand. There is true joy in capturing a beautiful moment in nature and time. I lose myself in the moments behind the camera. Parkinson’s disease symptoms seem to vanish briefly, as I focus on the image at hand. It takes my complete attention.
Stay informed and aware of what people with Parkinson’s disease are writing about, how they are dealing with the illness, and find information that may inspire or educate. Gain perspective and get unique views from people from all over the world.
Alec Langstein, a personal trainer, Rock Steady Boxing NoVA owner and coach, is not yet 30 but he’s changing the lives of many living with Parkinson’s Disease. Alec Langstein set out on a plan to share the benefits of Rock Steady Boxing and what he had seen it do for people with Parkinson’s disease. Watch as Alec shares his passion and vision to making a difference in his boxer’s lives.
Self-care is a topic that I talk about quite a bit, on this blog. During these changing times, it can be easy to forget wellness tools and tips that we have in our toolbox.
Angela and I were the hosts for speaker Polly Dawkins, Executive Director, of the Davis Phinney Foundation during a webinar organized by the Parkinson Social Network (PSN).
Almost every Parkinson’s disease conference that I have ever attended, over these 30 years of going to symposiums, lectures, and meetings, almost all of them had a an associated tee shirt.
Making a connection with your physician(s) can build a rapport that is less stressful and reduces the usual doctor visit anxiety.
I find myself spinning my wheels rather than keeping focused on what I should be doing. The distractions are boundless. Procrastination has become far too easy!
A Day of Parkinson’s Education in Williamsburg #parkinsons #education #support by Karl Robb – A Soft Voice in a Noisy World blog