Hello Everyone – I’m Angela, Karl’s wife, carepartner, and co-author. Usually I’m in the background helping Karl with the website but he’s asked me to pop in today to share with you an event update. There are many events coming up soon, so we wanted to make you aware of them ASAP.
Give a Dime About Parkinson’s Red Letter Campaign for Parkinson’s – EndingPD.org
A new Parkinson’s disease advocacy and awareness campaign, developed by the four authors (Dr. Michael Okun, Dr. Ray Dorsey, Dr. Bas Bloem, and Dr. Todd Sherer) of the Ending Parkinson’s Disease book, has launched! Visit EndingPD.org to find out all about the campaign which includes: requesting a letter or downloading the letter to print and send the White House on March 16th, information about the 3 Asks in the letter, informational videos, and more! There will be a LIVE online event, hosted by Larry Gifford (Founder of PD Avengers and host of the When Life Gives you Parkinson’s podcast) interviewing the four authors of the campaign on March 16th, 2021 12-1pm ET.
YOPD Women’s Council – hosted by the Davis Phinney Foundation – March 3rd
The Davis Phinney Foundation is hosting this virtual meeting, the first Wednesday of each month from 12:00pm -1:15pm MST (11 am PST, 1 pm CST, 2 pm EST, 7 pm GMT). Visit this link to register and this link for the archive of the first meeting.
2nd WPC Care Partners Talk Series – March 4th
The World Parkinson Coalition kicks off the 2nd Care Partners Virtual Talk Series this Thursday March 4th 3pm ET with a panel discussion on Care Partners and Self Care throughout the journey. The panel includes two healthcare professionals and two carepartners. Click here to read more and register.
Parkinson Voice Project Webinar & Information Session – March 9th
The Parkinson Voice Project is hosting a webinar and information session the Second Tuesday of each month at 11am CST/12 EST (double check your time zone). The next session will be held on March 9th and the topic is Learn about Parkinson’s and the Benefits of Speaking With INTENT. For more information and to register, visit their website by clicking this link.
Cognitive Changes in Parkinson’s Disease: What to Expect and How to Manage Symptoms – March 10th
On March 10th from 12:00pm -1pm EST the Parkinson Foundation of Western Pennsylvania is hosting a webinar with Dr. Sarah Lageman discussing cognitive changes in Parkinson’s. Dr. Lageman will describe what cognitive changes can occur in Parkinson’s disease as the illness progresses over time. She will also share strategies, which both the person with Parkinson’s disease and their family members can use, to help manage these changes and optimize functioning. Visit Foundation’s website for more information and to register.
Online Research Study about Parkinson’s Self Care
The University of Uulu, Finland and six partner universities are looking for those living with Parkinson’s to share knowledge about their Parkinson’s Self-Care. The website includes study information, consent details, and identification protection. Visit the website for more information about this study.